I signed up. Many survey questions need adjustment. There is no field to put clarity or other variations in the answer so it can be answered. I realize surveys are made to get the best answer from many people. But many of us do not fit into restricted answers. I ended the survey where there was a comment box with this simple statement: "Most of these survey questions were not meaningful and had limited answers that did not represent me, and without a comment field to clarity."
- example, it forces you to answer if there is family history. I really don't know, so put no but there seems possible symptoms as I reflect back.
- It has list of diseases to choose. I'm not positive which, but was diagnosed with COPD with lung function test. Am going for second opinion.
- Asks FEV1 %, but mine was 10 points different between before / after Trelegy (first was after 1 hour in a perfumed soaked waiting room !). I put number after Trelegy for a month.
- Asks lung symptoms, but are too vague to know how to answer. Example, Have you brought up phlegm at least 3 months per year. I have no idea how to answer that to be meaningful. Even if I cough once to clear my throat? Everyone does that.
- Or asks do you have GERD. I don't, but it does not ask about silent laryngeal reflux, for which I am in a trial for 3-months with Nexium. The two have different treatment.
- It asks about cough. Yes, but not related due to possible damage to throat from exposure to cement dust 40 years ago. But is part of why I am in the Nexium trial, so may be related.
- Or asks if I have wheezing. For me, so rare not worth saying yes.
- Or on breathlessness. Can't answer that. I have had 3 rare incidents, 2 perfume exposure related. Otherwise no symptoms. So Yes, but too rare to say yes even though recent and may be relevant as part of progression.
- The scale questions are also unclear. Such as the chest being tight. This has no scale answer for me. I've had a couple of feelings like this but answer is no on some scale.
- Or scale question about sleeping soundly. I can't answer that as it is the drug Trelegy that began the sleep problems (waking at 2 am). Before I slept like a baby.