COPD360social welcomes new member Dar molly who joins 59,188 current members of our community. Weโ€™re glad you're here!

COPD360Coach Brandon

COPD360Coach Brandon

The Lovexair Foundation has launched a survey which aims at understanding how patients, caregivers, family members, and healthcare professionals feel about the influence of new technologies and telehealth in medical consultations.

This large-scale project aims to determine how much virtual consultations have become a part of our everyday lives, and whether they are a replacement for or an addition to in-person medical appointments.

Please take a few minutes to complete and share your thoughts on the digital transformation of healthcare and assess how well it meets your expectations. This survey is open until April 30, 2024.

For patients/caregivers/family members:
https://www.lovexair.com/telehealth-patients/

For healthcare professionals:
https://www.lovexair.com/telehealth-hcp/

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Terrific Tuesday! 
Today is a good day to count your Blessings. Be happy for everything you have, and everyone you have in your life! 
We are taking our Boxer Hazel Madeline to the vet this morning for her annual checkup and shots. Looking forward to getting this done! 
Have a wonderful day, filled with positive thoughts, and big smiles! ๐Ÿ˜€

14 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Sadly, 2 more friends have gone to the next realm.  One is a friend of Hโ€™s and one is a guy who had been attending my support group meetings for years, Alvin. Just spoke to his wife. He was a very nice guy and will be missed. 

17 hours ago

Fritz45

Fritz45answered the question Asthma/COPD overlap at 31

Thanks for the support everyone. I went into the Dr today - not sure how to feel about it. They have diagnosed me with COPD but they don't know what phenotype it is...they are testing me for that one genetic marker (no emphysema was on my CT scan so …
das23David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question das23and 1 other also answered the question

19 hours ago

MarylandMama20

MarylandMama20

Hi there, new friends,
Looking for some helpโ€ฆ.
I am seeing an interventional pulmonologists via televisit Wednesday. I think mostly to discuss the nodules found on my CT Scan ( There is a 5 mm right middle lobe fissural nodule & There is a 4 mm left lower lobe nodule). I was just diagnosed with moderate COPD last week at 44.  How should I be preparing myself for this visit, are there specific questions I should be asking? 


I wish it was an in person meeting as I run very anxious. Since my diagnosis, I have found myself preparing for the worst, especially when it comes to these nodules as nodules are more common over 50. 


Also, no one has taken blood work from me through all this. I had an alpha1 test done but am still awaiting results, but outside of that finger stickโ€ฆ nada. Is this normal? 


Once again, I look to the experiences of my new COPD fam to guide me. Please feel feee to share any experience with me that you think will assist me with this appt. 


I thank you all in advance, and am sending all the hugs. Hope you all had a lovely start to your week. Xxxxx ๐Ÿ’›

21 hours ago

  • NewestOldestClick to View All Comments13 comment(s)
  • MarylandMama20Airplaneโ€‹ thank you for sharing your experience. Also, those words are exactly what I need to hear. Anxiety is a muv. I hope you had a good day, and I very much appreciate your insight. ๐Ÿ’›7 minutes ago
  • MarylandMama20DebbieB.-Connecticut State Captainโ€‹ thank you my gardening friend. Itโ€™s so hard for me. I just feel like crying all the time. Iโ€™m hoping Iโ€™ll adjust to my new normal soon. I donโ€™t want to be in this funk. Iโ€™m soooo lucky to have my family, itโ€™s so hard to not feel like Iโ€™ve let them down. Itโ€™s hard to be in the moment right now, cause Iโ€™m just so sad and scared all the time. I so appreciate you and your positive attitude. You really have a way of putting me at ease. Thank you for your kind words. ๐Ÿ’›4 minutes ago
  • MarylandMama20Kandy State Captain of South Dakota โ€‹thank you for sharing your experience with me. I believe Tom
    Petty said โ€œthe waiting is the hardest partโ€ฆ.โ€ How do you manage your nerves? And, thank you for the ๐Ÿ€ and kind words. 1 minute ago
Kandy State Captain of South Dakota

Kandy State Captain of South Dakota answered the question COPD and Blood Pressure?

So true. Sometimes take it right away then wait a bit and take it again. End of appt might be better depending on news you get!!
HeucheraSedona7Janina Kand 1 other also answered the question Heucheraand 3 others also answered the question

22 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

QUICK LENTIL SALMON SALAD3/4 cup brown lentils1/2 cup chopped red onion1/4 cup thinly sliced red onion 2 cloves garlic, minced1/2 tsp. salt1/4 cup olive oil 3 tbsp. red wine vinegar 3/4 tsp. dried thyme1/4 tsp. pepperOne 15-ounce can salmon, drained...

1 day ago

MariaC

MariaC

Hello! This is my first post. I have been looking around on here and trying to figure some things out on the 360 social. I was just diagnosed with COPD in January. I always said I would never quit smoking but it has been almost 7 weeks now since a cigarette. I am on a patch and doing great.***
My MAIN question 
My hands and MOSTLY feet tingle and are cold a lot. My PCP says it could possibly be neuropathy (tests ordered)but she is not sure because it only started when I had a 6 night stay in the hospital less than a month ago for a episode with my lungs. (exasperation ?)I say to my daughter my feet hurt, all the time ha ha. They do not really hurt but they tingle tingle tingle while sitting anyways. When I am walking I may just not notice the tingle. 
Anyone else experience feet tingles? 
Thanks in advance. I hope everyone has a great evening. :)

1 day ago

Tg10

Tg10

Good afternoon, just seen the pulmo.  He tried me on low dose morphine for 3 weeks.  No fix.  I told him i felt ill for 4 days, shaking, sweating, etc. I coughed up a scab like phlegm.  Very small amount.  I told him.  He wasn't surprised.  He's still on non asthmatic eosinophilic bronchitis.  I'm in steroid inhaler and nose spray. Still coughing though.  I don't know what's next.  He said during my scope my bronchial looked inflamed from cough.  Eosinophilic count was high.  I'm still at the same condition as 4 years ago.  No change.  Next visit in July.  Maybe oral steroids? 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainEARTH DAY 2024, a day for everyone to do their part! ๐ŸŒŽ

1 day ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Earth Day is an annual celebration that honors the achievements of the environmental movement and raises awareness of the need to protect Earth's natural resources for future generations. The first Earth Day was held April 22, 1970

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Having a few friends over for coffee? Why not bake this loaf of goodness to serve with the coffee?! โ—ฝDATE NUT BREADโ—ฝ1 cup chopped dates1 tsp. baking soda 1 cup boiling water4 tbsp. melted butter 1 cup sugar1 large egg, at room temperature 1...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Let's talk about dates! Dates are commonly referred to as "nature's candy" because they release a sweet and deep, rich caramel flavor when eaten. Dates are packed with polyphenol, which may help prevent vascular diseases such as atherosclerosis,...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

 ๐ŸŒŽ HAPPY EARTH DAY 2024! ๐ŸŒŽ
This year our goal is to eliminate plastics! What will you do to eliminate plastics?
Stop buying bottled water. Buy a water filtration system or pitcher.
Stop using plastic wrap. Buy reusable, strecthable bowl covers.
Stop using plastic disposable drinking straws. 
Stop using plastic shopping bags.
Buy a stainless steel water bottle. 
Buy stainless steel drinking straws and a straw cleaning brush.
Buy and carry reusable shopping totes.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's Motivational Monday! Start your day with a can-do attitude! A big smile is very contagious! You, having a good day, will spread to others! You are a special person...always know that! ๐Ÿ˜Š

1 day ago

Jayv2251

Jayv2251

Hello all! I just found out about this foundation a little while ago. I was diagnosed as having Stage 2 COPD in September of 2021. Since then I've had pneumonia twice and most recently Covid at the end of this past February.  While my 02 readings are still above 90, I struggle constantly and am frequently out of breath. Part of the issue is being prescribed prednisone anytime I so much as cough twice in a row. I've gained 50 lbs because of this! 

I'm also having transportation issues. I did qualify for ADA "free" rides through a local medical transport company, but they have limited hours (M-F 8 am to 4 pm ONLY!) No weekends and you have to call by 3:15 for the 4 cut-off or you're left stranded. 

With them big push to "green" energy, are there any grants for an E-bike, that I can also start doing some exercise? 

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Emphysema, and near perfect PFT

It is a noninvasive form of ventilation that does the breathing for you. Bi is for bi-level air pressure. When you are on the inhalation phase of breathing the pressure pushes the air deep into your lungs. When you are on the exhalation phase the …
Queen69JazzybeanDavid Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question Queen69and 2 others also answered the question

2 days ago

Red2

Red2answered the question New Spirometry Results/ Questions

Thank you for your response I will ask her to review the images during our next visit.
David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question

2 days ago

Queen69

Queen69

Ok

2 days ago

Susiereader

Susiereaderanswered the question Has anyone tried Breztri vs Spiriva

Yes, I was on Spiriva for years. In Dec. I told my PCP that I didn't think it was doing anything to help my breathing. He told me not to take it anymore, but didn't prescribe any thing else. So I was dependent on rescue inhalers,and doing that all wrong. …
Jean IA State CaptainBill Clark - Community Manager also answered the question Jean IA State Captainand 1 other also answered the question

2 days ago

Jary

Jary

๐Ÿ˜Š I got up with a very positive feeling. Thanks to my brother who registered me 

2 days ago

Joan62

Joan62

Good morning.  I am having a problem with moisture in the tubing and it is driving us crazy - and disturbing our sleep. I have read the comments on this subject and will call supplier.  Oxygen generator has been in use since early February the bubbling sound just started being a problem two nights ago.  Equipment has been in the same place, temperature in the house is the same. Any idea why this is happening all of a sudden? And any idea how to remedy the situation?

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHave a beautiful Sunday, friends! ๐Ÿ˜€

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIf you like antique garden pieces, we have a unique, odd one that my husband picked up at a garden shop that sells antique garden furniture and planters. Although it is a bit rusty, and not in perfect condition, it is a piece I doubt I'll ever see again. We plan on finding an antique cast iron urn or planter to place on top, then we will place a fern in it. Showing the piece we have. We have not done anything with it yet, and a picture with a tiny bit of information found online. 

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's Volunteer Appreciation Day!!!
A BIG thank you to all of our volunteers here at the COPD Foundation!!! ๐Ÿ‘ ๐Ÿค—

3 days ago

Jean IA State Captain

Jean IA State Captainanswered the question Typical improvements in FEV1 on inhaler

I think Dave points out one of the difficulties in determining which inhalers work best for you. Your pulmonologist will prescribe the one they think will work best for you, based on their experience and knowledge of you as a patient. Sometimes they'll …
David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question

3 days ago

JeanO53

JeanO53Say Hello to Mother Goose!   
No little ones yet, but I'm guessing it won't be long.  Stay tuned!

3 days ago

MarylandMama20

MarylandMama20

Iโ€™m not doing so good. Newly diagnosed mommy to a 4 y/o. FEV1/FVC: 66.21. They also found 2 lung nodules. Iโ€™m 44. 

3 days ago

  • NewestOldestClick to View All Comments29 comment(s)
  • David Mannino, MD (Chief Medical Officer, COPD Foundation )PFT shows moderate obstruction ( stage 2) - nearly normalized post bronchodilator.  No evidence of Air trapping ( normal RV)  or emphysema ( normal RV and normal DLCO).  The lung nodules are very tiny ( less than 6 mm - about the size of a BB ).  Ones this size are typically just followed ( but I defer to the doctor you'll be seeing for this).  I would characterize this as early COPD with mostly airways involvement.  Stopping smoking/ vaping, getting exercise, proper diet, and getting all of your vaccinations are key.  You should do fine!2 days ago
  • David Mannino, MD (Chief Medical Officer, COPD Foundation )Also- your response to Trelegy is a good sign !2 days ago
  • MarylandMama20David Mannino, MD (Chief Medical Officer, COPD Foundation )โ€‹


    Thank you very much for your assessment. I appreciate you so very much. Hope you have a wonderful rest of your Sunday. 1 day ago
DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends! Enjoy the start of your weekend! ๐Ÿ˜€

3 days ago

David29

David29asked the question: Typical improvements in FEV1 on inhaler

Hi everyone, I am curious how much does FEV1 typically improve after treatment on the appropriate inhaler? I found that LABA/LAMA inhalers were only having a small effect. Since starting Trelegy my FEV1/FVC has quickly increased from 70% to 75% (a …

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.