COPD360social welcomes new member Mlatimer1946 who joins 60,998 current members of our community. Weโ€™re glad you're here!

Bill Clark - Community Manager

Bill Clark - Community Manager

DO NOT POST ANY TEST RESULTS until you have completed all your tests AND spoken to your own doctor or medical team and gotten a diagnosis! This is for your protection and ours.  Your doctor has access to all your medical records and we do not.  Interpeting partial results can often lead to a incomplete, or inaccurate diagnosis. This can cause you emotional harm and present liability concerns for us.  

Once you have completed your testing and spoken to your doctor we will be happy to help you understand the implications of your diagnosis and help you move forward, If you post any results without going through the proper steps your post will be deleted  and possibly your membership.

4 months ago

Jazzybean

Jazzybeananswered the question Morning Headaches... Mild COPD

HI, For what it's worth.....I went through the same problem for over quite a while, finally I brought it up with my primary doctor and requested a referral to a sleep clinic for a sleep study. While my oxygen levels never went below 90% they determined …
Caroline West Virginia State Captain also answered the question Caroline West Virginia State Captain also answered the question

5 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸฏHONEY BROWN SUGAR HAM GLAZE๐Ÿฏ2 cups packed light brown sugar 1 cup honey1/2 cup Dijon mustard 2 tbsp. butter 2 tbsp. cider vinegar Place all ingredients in a medium saucepan. Bring to a simmer over medium-high heat, stirring to break up any lumps....

6 hours ago

1fatfanny

1fatfannyasked the question: Morning Headaches... Mild COPD

Hi All, I have mild COPD, FEV1 around 90% and mild hypertension around 135/95. My Oxygen sats average 98% during the day and 94% at night (night time reading might not be a very accurate) I have a good exercise tolerance / non-smoker / healthy BMI. I …

10 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Trellegy

You have your answer from Dr. Mannino! I just wanted to ask you to keep us informed about what you find out.
David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question

11 hours ago

Pam2024

Pam2024

Does anyone have eye problems because of 24 hour oxygen use?

11 hours ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question I have COPD HIW do I get personal guidance from your research

Please go through our learn more section above. When you have specific questions you can post and we can try to answer. Everyone is unique, as are everyone's COPD journeys.

12 hours ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question cannot Get dressed without completely exhausting myself. The hardest part is putting on my socks. I

This is not normal. It sounds like you need to both your heart and lungs evaluated ( with a combination of pulmonary function testing, echocardiogram, possibly cardiac cath, possibly cardiopulmonary exercise testing, etc. )
das23Caroline West Virginia State CaptainKaren Deitemeyer - Florida State Captain also answered the question das23and 2 others also answered the question

13 hours ago

Community Announcements

Community Announcementsadded a new article COPD Foundation, lung health champions worldwide raise awareness of chronic lung disease

November 20 marks annual World COPD Day

Miami (November 20, 2024) - The COPD Foundation joins lung health champions around the world in recognition of World COPD Day today, November 20, to raise awareness, share knowledge and take action to reduce the burden of chronic obstructive pulmonary disease worldwide.

COPD comprises several conditions, including chronic bronchitis and emphysema, and can be caused by genetics and irritants like smoke or pollution. The disease affects more than 30 million Americans and is the third leading cause of death worldwide, yet awareness of the disease's symptoms, methods to reduce risk, and disease management remains poor. Symptoms include breathlessness, fatigue, and chronic cough.

This year's World COPD Day is focused on "Know Your Lung Function" and highlights the importance of spirometry. Spirometry is an important tool in diagnosing COPD and can also be used throughout a person's life to assess a person's lung function as an indicator of their overall health.

14 hours ago

John Stratton

John Strattonasked the question: Trellegy

has anyone been on Trellegy and it stoped working

14 hours ago

Wildebeest

Wildebeestanswered the question I have a few questions. I'm new here.

Are you bringing up mucus (or trying to) when you cough? I'm not sure if the breathing techniques on this site (Learn More) section cover the huffing technique as I have not yet checked it. But I've learned from some UK asthma and lung sites that doing a …
Caroline West Virginia State CaptainKaren Deitemeyer - Florida State Captaindas23 also answered the question Caroline West Virginia State Captainand 2 others also answered the question

14 hours ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Today is World Copd Day November 20th to raise awareness with knowledge and treatment world wide.   Estimated 2020 there is over 480 million people in world with Copd.  By advocating and getting the message out hopefully we can decrease that number.   Join in the global effort to improve those with Copd.  The World Copd motto is, Know Your Lung Function! 

14 hours ago

Brenda Jo

Brenda Joasked the question: I have COPD HIW do I get personal guidance from your research

How do I receive personal information on how to access all available resources for my COP

14 hours ago

baileymccrary

baileymccraryHello everyone! Happy World COPD Day! Our Captains and members of the Advocacy and Public Policy Team are spreading awareness of COPD in many different ways. Check out this great content and see how we're celebrating today!

Florida State Captain Bob Sobkowiak co-authored an op-ed about COPD Awareness Month for November 2024. You can read the article here: https://www.dailycommercial.com/story/nletter/2024/11/18/copd-not-just-for-smokers/76404375007/

California State Captain Cyndy Ruess released a song about the COPD patient experience! You can listen to her song here: https://soundcloud.com/cyndy-ruess/tossin-cookies?ref=clipboard&p=i&c=1&si=3805DB8D97074DA3947A6067BFAEB7D3&utm_source=clipboard&utm_medium=text&utm_campaign=social_sharing

COPDF Chief Mission Officer Linda Walsh, Dr. Roberto Benzo, and I will be having a fireside chat about health coaching today at 3:00pm EST as part of the Big Baton Pass! You can tune into the discussion here: https://copdbatonpass.org/live-event-2024/

16 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Wednesday!
For those who are new here, COPD stands for Chronic Obstructive Pulmonary Disease. 
We have an abundance of helpful information. Simply click on the LEARN MORE tab at the top of the page. 
Becoming educated is a good way to help support COPD Awareness Month. 
Enjoy your day, friends! ๐Ÿงก๐Ÿ’™

21 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

Okay and who wants to guess when we will reach 61,000?

1 day ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

My Facebook memories just popped up that 360Social went live 10 years ago ๐Ÿ˜  I remember joining as soon as it happened.  How many of us were here then?

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœด๏ธHOLIDAY BRUSSELS SPROUTSโœด๏ธ16 ounces fresh Brussels sprouts, trimmed and halved2 tbsp. olive oil 1 tbsp. minced fresh thyme Salt and freshly ground black pepper to taste 1 cup fresh cranberries 2 tbsp. pure maple syrup Preheat oven to 400...

1 day ago

DowntownJB

DowntownJB asked the question: cannot Get dressed without completely exhausting myself. The hardest part is putting on my socks. I

cannot Get dressed without completely exhausting myself. The hardest part is putting on my socks. I become breathless and have to go into a recovery mode. Takes about 90 seconds to get under control. Thatโ€™s only a little thing. Iโ€™m unable to rake leaves, …

1 day ago

Copd1973

Copd1973asked the question: I have a few questions. I'm new here.

I've always had asthma but never had trouble with it until a couple years ago. Earlier in the year my dr diagnosed me with stage 2 copd. No literature or anything. Just told me to quit smoking. He put me on Trelegy (only half a lung was working 50% …

1 day ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Today and everyday we have hope that there will be a cure for these lung diseases..  Nearly 16 million people have Copd in US am sure its more that don't know it.  We need to spread the word all across the country to get tested early.  People think that is just old age and it could be Copd.  Early detection can be treated.  November is Copd Awareness Month. 

1 day ago

Flamingo lady

Flamingo lady Woken up to the beautiful white stuff this morning โ„ have a lovely day everyone ๐Ÿ˜˜

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHey folks! We ARE your support squad! Please help us spread the word about COPD Awareness!
We are your go-to COPD information source! Tell your friends and family to visit us at copdfoundation.org! 
Have a terrific Tuesday! ๐Ÿ˜€

1 day ago

Demianstrouble

Demianstroubleanswered the question Developing a retractable oxygen reel

I was actually thinking of a system to have the line along the ceiling instead of on the floor, with a sort of pully system
jim1945Mik786Merryand 1 other also answered the question jim1945and 3 others also answered the question

2 days ago

Apolinar

Apolinar

I have a collapse left lung

2 days ago

Apolinar

Apolinar

Anyone to help me here

2 days ago

Apolinar

Apolinar

I want to ask about my situation hera about my lungs

2 days ago

Apolinar

Apolinar

What can I do here

2 days ago

Holly Rauch

Holly Rauch

A little scared I have a couple appointments tomorrow CT scan and lung breathing test then see my pulmonologist. 

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.