COPD360social welcomes new member greenie1 who joins 61,808 current members of our community. Weโ€™re glad you're here!

baileymccrary

baileymccraryHello everyone! The NIH just announced drastic cuts to research funding that will have devastating effects on the organizations who have produced countless medical breakthroughs and are our hope for battling COPD. Please urge your lawmakers to take immediate action against this critical threat to cutting-edge research by visiting our Advocacy: Action Center: https://www.votervoice.net/COPD/Campaigns/121397/Respond

Join our Advocacy | Action Center | COPD Foundation

The COPD Foundation community works with local, state, and federal policy makers to increase research funding, improve care delivery, protect access to treatments, and create policy that improves the lives of those with COPD and related lung conditions. We cannot act alone. Use this COPD Action …

4 days ago

1fatfanny

1fatfannyanswered the question Need some hope.

Hi Greenie, I'm not a clinician, and only clinicians can crunch your numbers... However, you do seem to have many of the lifestyle factors that are regularly discussed as negatively impacting COPD... Current smoker / obese / sedentary... The clinicians …

34 minutes ago

greenie1

greenie1asked the question: Need some hope.

my first spirometry resulted in a moderate COPD diagnosis. Iโ€™m 46 and a long term smoker (albeit light/social for the last 10 years) so I guess I shouldnโ€™t be very surprised. The thing is that the only symptom I have is shortness of breath when I walk …

2 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Please help

Also heart and other issues can cause breathlessness and brain fog. Keep asking your providers for help.
Caroline West Virginia State CaptainPhyliss DiLorenzo NJ State Captain also answered the question Caroline West Virginia State Captainand 1 other also answered the question

8 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainThought for today:

10 hours ago

T Town

T Townanswered the question Asthma/COPD overlap at 31

Hi Fritz45. I am not sure if you've read my story (kind of long sorry :/) but your situation reminds me a little bit of my story. 115% of predicted DLCO, 91% FEV1, 65% FEV1/FVC. Probably more symptomatic (SOB) than I should be for a FEV1 of 91%. …
Fritz45David Mannino, MD (Chief Medical Officer, COPD Foundation )Karen Deitemeyer - Florida State Captainand 1 other also answered the question Fritz45and 3 others also answered the question

12 hours ago

Gemgemzzzzz

Gemgemzzzzzanswered the question Mixed defect? Obstructive and restrictive

David Mannino, MD (Chief Medical Officer, COPD Foundation )Anonymousnetmouse also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 2 others also answered the question

16 hours ago

Sedona7

Sedona7answered the question Is anybody looking at NAD+ (nicotinamide adenine dinucleotide) or NR (nicotinamide riboside)

I was just reading about a blind study completed last year pertain g to NAD and COPD. It can be found on line but the results after taking 2000 mg(I believe) for 6 weeks were promising. Iโ€™ve just learned that one can also get an NAD injection. As Iโ€™m …
kathleenmatspacanEvanofEarthand 2 others also answered the question kathleenmatand 4 others also answered the question

17 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Happy Valentineโ€™s Day to all our amazing friends on 360social!  Today is all about love, kindness, and connectionโ€”and that includes showing yourself some love too! As we celebrate, letโ€™s also take a deep breath and appreciate Better Breathing Days, a reminder that every breath matters, and weโ€™re in this together.  Whether you're sharing the day with loved ones, friends, or just treating yourself to something special, know that you are valued and appreciated today and always! 

17 hours ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Pneumonia recovery

Recovery can take up to 90 days. You may benefit from a pulmonary rehabilitation program and should ask your health care provider about that.

19 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday on this Valentine's Day! We have here two fluffy friends who are definitely in the Valentine's Day spirit!
Enjoy your day, friends! โค๐Ÿฉท๐Ÿค

23 hours ago

Mary Darling

Mary Darlingasked the question: Pneumonia recovery

I was diagnosed with Emphysema in 2018. My CT scan in November read stable. I am 6 weeks out from a pneumonia diagnosis. I am still struggling to walk or stand for any amount of time without loosing my breath or spastic coughing. Am I expecting to much …

1 day ago

Hugh Swan

Hugh Swan

1 day ago

Danforth55

Danforth55answered the question Spirometry: What was your experience?

My first test was two years ago when I recieved a ct diagnosis of mild centrofibular emphysema. My test was normal. Have had two ct scans since that show no emphysema but mild fibrosis, interstitial disease, and scarring. Today my spirometry results are …
carolmariev11Groverlazy tand 16 others also answered the question carolmariev11and 18 others also answered the question

1 day ago

Patricia_Snoopy2

Patricia_Snoopy2

Iโ€™m doing very good. 

1 day ago

Barbara Hawkins

Barbara Hawkins

Hi. I was diagnosed with emphysema 30 years ago. I laughed. I had no idea. Im now at Stage 4. Im actually pretty scared. Im not sure of my feelings 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWhat in the world can I do with this jicama, you may be asking yourself...
Take a stroll on over to the Eating Well blog to find out! ๐Ÿ˜ƒ

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Let's talk about jicama. Jicama is a crunchy vegetable. It has a mild taste. You'll love jicama for its health benefits. It is high in fiber. It provides 20 percent of your daily vitamin C. It contains flavonoids. It is made up of 90 percent water,...

1 day ago

Dawnieodawn

Dawnieodawn

 today today I'm not doing so well I have stage 4 COPD and stage 3 asthma I'm trying to find a grant or some funding opportunity where I can get a free air purifier for my home to help prolong my life a little bit I just not having any luck and I'm desperate I live on SSI so things are typical for me

1 day ago

jodan1213

jodan1213answered the question Q and A: Did you know that your heart and lungs are โ€œteammatesโ€?

As I write this I am on day 5 of my first hospitalization since being diagnosed with ASTHMA COPDOVERLAP SYNDROME seven years ago. During my visit to ER last week I was just treated for an exacerbation of COPD. But I tested positive for the flu and by …
Caroline West Virginia State CaptainEddie 7PatO State Captain Arizonaand 4 others also answered the question Caroline West Virginia State Captainand 6 others also answered the question

1 day ago

Michelle McGowan

Michelle McGowan answered the question Levels of exhaustion

yes. Every single day. If I donโ€™t hold on something, my legs give up
muddleagedcarolmariev11Jonnie Korinko (COPDF Manager of Public and Professional Education)and 1 other also answered the question muddleagedand 3 others also answered the question

1 day ago

Michelle McGowan

Michelle McGowan asked the question: Please help

Iโ€™ve been diagnosed with COPD with hypoxia. Iโ€™m experiencing SOB, so I measure my oxygen that shows 94. And I was in bed. I also have symptoms like dizziness, brain fog, loss of memory, and weakness all over my body. I measured my Oxygen when I …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainhttps://ecology.wa.gov/blog/february-2025/clearing-the-air-around-wood-stove-legislation


This is an interesting article. My neighbor uses a woodburning stove, and it causes me to have breathing problems. ๐Ÿ˜ท

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainThoughts of peace, feeling the calmness within you...Have a Blessed day, everyone. 

1 day ago

WitchyBev

WitchyBevcommented onCOPD Flare-Ups: Warning Signs, Prevention, and Management

Wow, this is so helpful, I've never been sure what an exacerbation actually is. My doc prescribed me a combintion of Zpac antibiotic and Prednisone for "when I need it" and I've used it when the coughing got noticeably worse and I always have it on...

2 days ago

EvanofEarth

EvanofEarthHello friends. Massive cuts to Medicaid are currently being planned, which could negatively impact millions of people. If you would like to take action to prevent or minimize cuts, here is a link. Thank you!
https://lung.quorum.us/campaign/ProtectMedicaid/?utm_source=sfmc-ala&utm_medium=email&utm_campaign=20250212_PCN_Tips_February&utm_term=TAKE_ACTION&utm_id=639680&sfmc_id=359701543&s_src=sfmc-ala&s_subsrc=20250212_PCN_Tips_February__Alias__TAKE_ACTION&referrer=sfmc-ala-20250212_PCN_Tips_February

Tell Congress to Protect Medicaid

Please contact your members of Congress now to ask them to reject any changes to Medicaid

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

SLOW COOKER GROUND TURKEY STEW16 ounces ground turkey Salt and freshly ground black pepper to taste 4 medium potatoes, peeled and thickly sliced6 medium carrots, peeled and thickly sliced1 small onion, roughly choppedTwo 10.75-ounce cans tomato...

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question What is the new rule about lithium ion batteries and flying with oxygen?

There doesnโ€™t appear to be a limit on the # of batteries you fly with <100 watt hours for personal use. Itโ€™s inconvient to fly with more small batteries, sure but not many other ways out of Hawaii.
Ken Benson-California Lung Health Advocate and State Captain also answered the question Ken Benson-California Lung Health Advocate and State Captain also answered the question

2 days ago

Community Announcements

Community Announcementsadded a new article When is an Exacerbation Worsening COPD?

This article was written by Jonnie Korinko, MSRC, RRT, RRT-ACCS.

Most people with COPD sometimes feel short of breath.1 If they feel this way more often or more severely, they are more likely to have exacerbations, which are sometimes called flare-ups.1 When people notice their symptoms and get help right away, they are less likely to have exacerbations.2

Knowing the Symptoms

Feeling breathless is common with COPD. Some people also notice a frequent cough and mucus in their chest. Other people may have wheezing and chest tightness.3

People with COPD need to be aware of their everyday symptoms to know when they are getting worse.

What is a COPD Exacerbation?

An exacerbation is when a person with COPD has sudden and severe worsening of their symptoms. These include:

  • Worsened shortness of breath.
  • More coughing and mucus in the chest.
  • More wheezing.

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.