COPD360social welcomes new member Texas Hoofer who joins 62,584 current members of our community. Weโ€™re glad you're here!

Dr Jean

Dr Jean

Hello COPD Community !  I've never been more excited about the future for our community, our patients and our providers.  The opportunities continue to expand.  And if you could see behind the curtain, and see how effective our COPDF team is, you would be proud.  We just finished an inperson/hybrid board meeting in Coral Gables at the Alpha 1 headquarters.  It was great to re-connect with our Alpha-1 family.  We are working together on research, education and advocacy.  Let me know how I can help and improvements you would like to see in our community.  Until we have a cure !  Dr Jean Wright

1 week ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

This looks absolutely yummy, Debbie!! I'd make it right now, except I don't have the chocolate chips. But I've got everything else. So, next time I go to the grocery I'll buy a bag and make this and share with my friends. ...

2 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

EASY NO-BAKE PEANUT BUTTER BARS1 cup butter, melted2 cups graham cracker crumbs2 cups powdered sugar 1 1/4 cups peanut butter, divided 1 1/2 cups milk chocolate chipsIn a medium bowl, mix together the melted butter, graham cracker crumbs, powdered...

2 hours ago

JRSNC

JRSNCanswered the question Ohtuvayre ??? Any feedback would be helpful!

curious if youโ€™re still doing all those nebulizer 3 months later and how thatโ€™s working. Just started Ohtuvayre but confused if itโ€™s supposed to replace or supplant duoneb and budesinide. Am also doing treligy daily. This is the first confirmation Iโ€™ve …
HIcopd - Hawaii State CaptainPJCinGASevensand 6 others also answered the question HIcopd - Hawaii State Captainand 8 others also answered the question

3 hours ago

lazy t

lazy t

I have had a concentrator for nights for a long time. The setting has been at 2L I have a portable with the same setting. Today, I had the portable operating, but I did not feel I was getting results. Minor movements dropped my oxygen levels, and it took a long time to recover. I bumped the portable to 3..., with the same result. I bumped it to four and instantly got results. I checked my concentrator and bumped it to 3.5...my levels stayed where they should.  My thinking on this is I have been at 2L for years and years. Could I possibly require more now that I have aged? I am at stage 3 and have had no change after testing. I will see my pulmo in four months for the biannual visit.

4 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainEvery Saturday, all through until it gets cold...it's plant day at DebbieB.'s house! ๐Ÿ˜„

5 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question How safe is Famotidine 40 mg ?

I agree with Caroline. I took a proton pump inhibitor, Prilosec for about 16 years and we finally switched me to an acid blocker. I take it every night and have for about 9 years. My husband has likewise been taking his acid blocker mornings and evenings …
Caroline West Virginia State CaptainKaren Deitemeyer - Florida State Captain also answered the question Caroline West Virginia State Captainand 1 other also answered the question

7 hours ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captainanswered the question Has anyone used Wixela for COPD and if so, was it useful in relieving any symptoms?

I was switched from Advair to Wixela a few years ago by my provider. I've noticed no difference between the two.
David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question

7 hours ago

Dawn000

Dawn000Playing peek a boo with my fur baby on this beautiful Sat. Hope Everyone is having a great day and feeling well. 

8 hours ago

Dawn000

Dawn000asked the question: New pft

this is my newest pft from this past Weds .....hoping someone can help read it . Thank you

9 hours ago

CountryAnne

CountryAnne

Hello all. Hope you all are having a good breathing day.  Just checking in after being gone a couple years.  Looking forward to sharing.

11 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday! Keep a positive outlook, and keep a big smile on your face! YOU GOT THIS! And, remember, we are always here for you! Have a wonderful day, friends! ๐Ÿ˜€

15 hours ago

Smokey100

Smokey100

I to live in fear. Im in a constant state of panic. Not sure what to do. I try meditation and breathing excecises.  Nothing is helping. I try
 to walk 6 days a week at least 3
 miles. Im panicy through the whole walk not relaxing at all. Not sure what to do at this point.  
Thanks

18 hours ago

Smokey100

Smokey100

Hi, 
Im new, i signed up long ago but never used the sight. Im wondering what the score is and what is it about?
Thanks, 
Robin 

18 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question I'm new to Trelegy - What results have you had?

I have been on Trelegy for several years and was hoarse for about a week, but then that passed. Trelegy and exercise has enabled me to improve my breathing considerably.
GAnneGdPaPJCinGAand 3 others also answered the question GAnneand 5 others also answered the question

20 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Spirometry interpretation

I was going to tell you what you found out on ChatGPT. The graphs and the numbers do not jive or agree. Something is going wrong, but it may not be your lungs. I agree with Val that you need to go somewhere that they can do a complete work-up on you to …
HIcopd - Hawaii State CaptainJordan HuttonKaren Deitemeyer - Florida State Captain also answered the question HIcopd - Hawaii State Captainand 2 others also answered the question

20 hours ago

Ben duckket

Ben duckketasked the question: How safe is Famotidine 40 mg ?

I was taking pain pills (many different types) for a muscle spasm in my back and got an "acid stomach" as a result. I was on a PPI for a month which worked and when I stopped, the acid stomach came back. I started taking Famotodine and after a few weeks, …

21 hours ago

JeanO53

JeanO53answered the question Sunrise or Sunset?

Thank you all for the kind comments about the pictures. I'm not sure I can decide either. I'm not up early enough to see the sunrise very often, so it's very special when I get to see it. I get to see the sunset more often and every time it's pretty …
Dawn000Karen Deitemeyer - Florida State CaptainPhyliss DiLorenzo NJ State Captainand 4 others also answered the question Dawn000and 6 others also answered the question

22 hours ago

JeanO53

JeanO53Happy Fluffy Friday from the Grant Park Goslings; 
These are 4 of a 6 gosling family.  There are many more throughout the park

22 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐Ÿ’™ Itโ€™s Nurseโ€™s Week, and we just want to say a big THANK YOU to all the amazing nurses out there!

From offering comfort on the hard days to helping us breathe a little easier (literally and emotionally), you are the heart of healthcare. We see the difference you make, and weโ€™re so grateful for the care, kindness, and humor you bring to the table.


Hereโ€™s to you--today and every day!

1 day ago

Dawn000

Dawn000answered the question Pft

Thanks to you for answering its greatly appreciated .
David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸดASIAN SLAW๐Ÿด6 cups shredded green and red cabbage 3 scallions, thinly sliced 1 cup chopped cilantro Dressing:3 tbsp. olive oil2 tsp. toasted sesame oil 1/4 cup rice wine vinegar 3 tbsp. sugar1 tbsp. soy sauce1 tbsp. grated ginger...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from Johnny Rocket and Jerry Parker! 
Wishing everyone a pleasant, easy breathing day! ๐Ÿ˜Š๐ŸŒž

1 day ago

Mellie

Mellie

Hello to all!  I hope that you are all doing very well!  

It had been suggested by my pulmonary doctor that I might do well to get on the NIV to assist with co2 retention.  I found it extremely difficult to sleep with, regarding the mask.  There was a tendency to leek air around the edges of the mask.  When I tightened it, it stopping the leaking, but the pressure hurt my face.  I found that was unable to use the unit and had to return it to the oxygen supplier because sitting in a chair with it for a minimum of four hours every day was impossible for me.
My oxygen supplier has a new type of unit that might be easier for me to use:  Breas Vivo 45 Ventilator (NIV) which had been FDA approved in 2021.  There is no mask involved, only a specialized cannula.  Has anyone tried this, or share any information about it?  I would hope that it works well to keep the co2 out of my system.  Thank you for responses!

1 day ago

Colorowdy

Colorowdyanswered the question Has anyone had the spiration valves put in? Which one is better zephyr or spiration?

Hello Matthew, my name is Donna. My Pulmonary Specialist has recommended the valves for me and I have started the testing. He mentioned Spiration valves and from what I found the difference is in the structure, Spiration has little feet that anchor it in …
Caroline West Virginia State CaptainHIcopd - Hawaii State CaptainKen Benson-California Lung Health Advocate and State Captainand 1 other also answered the question Caroline West Virginia State Captainand 3 others also answered the question

2 days ago

Colorowdy

Colorowdyanswered the question Leg pain

I have had cramps in my legs flare up recently and found stretching daily helps relieve them and took it up with my Dr. later who agreed with me on the stretching and using Theraworx but you should check with your doctor first.
muddleagedHIcopd - Hawaii State CaptainDavid Mannino, MD (Chief Medical Officer, COPD Foundation )and 2 others also answered the question muddleagedand 4 others also answered the question

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.