COPD360social welcomes new member micol123 who joins 61,463 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Dear COPD360social Community,

It is with a heavy heart that I step into the role of Community Manager, following the passing of our beloved Bill Clark. Bill was not just a leader but a cornerstone of the COPD Foundation and our online community. He dedicated his heart and soul to building this safe, welcoming space where we could share, connect, and support one another through the challenges of living with COPD.

Bill's unwavering passion for uplifting others and his commitment to education and advocacy have left an indelible mark on all of us. His vision of fostering a community where no one feels alone in their journey has brought countless individuals together, creating bonds that transcend distance and circumstance.

As I take on this role, I am deeply humbled by the responsibility of continuing Bill's legacy. My goal is to honor his memory by ensuring that this community remains a source of strength, encouragement, and knowledge for everyone. Together, we can uphold the values Bill instilled in us: compassion, resilience, and the power of shared experiences.

I invite you all to join me in carrying forward Bill's mission. Let us continue to support one another, share our stories, and build connections that lift us all up. Together, we can honor Bill's incredible work and ensure that his spirit lives on in everything we do.

Thank you for allowing me the privilege of serving as your Community Manager. I look forward to working with each of you to make this community even stronger and more vibrantโ€”just as Bill would have wanted.

With heartfelt gratitude and determination,

Coach Brandon - Community Manager

4 days ago

Vinny M

Vinny M

Dear 360social Community,

It is with a heavy heart that I must share the news of the passing of Bill Clark, a cherished member of our community and a cornerstone of the COPD Foundationโ€™s work since its early days. Bill passed away last night, leaving behind a legacy of improving the lives of those impacted by COPD.

Many of you knew Bill as the Community Manager of COPD360Social, and in many ways he was the heart of our COPD community. His passion for sharing knowledge and support was evident in every interaction. Before joining the COPD Foundation, Bill dedicated 28 years to teaching special education in Ohio. That teaching spirit never left himโ€”it was reflected in his approach to everything he did.

In 2019, Bill was honored with the John W. Walsh Dedication to Excellence Award, a recognition of his contributions to our mission. It was a moment of immense pride for him and his wife, Alice, who joined him in celebrating the achievement. His acceptance speech perfectly captures his spirit and dedication to our community.

Billโ€™s journey with COPD drove his mission to make a difference in the world. He didnโ€™t just work for the COPD Foundationโ€”it was his calling, his passion, and his purpose. We will carry the torch to grow and strengthen 360Social in his honor. He inspired us all to strive for better outcomes and to never lose sight of our shared goal: a cure.

On a personal note, Bill was more than just my colleague. He was my friend and a trusted confidant. No matter the time of day, I knew that I could count on Bill. I will miss him dearly. I know many of you also considered Bill a friend and he will be missed by all of us.

We encourage those who feel comfortable to share your thoughts, memories, and tributes to Bill on 360social.

Details about plans to honor Billโ€™s memory will be shared as soon as we receive them.

As John Walsh always said...Keep the Faith. I am and I know that we can make Bill proud.

1 week ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœณ๏ธEASY ROASTED GREEN BEANSโœณ๏ธ1 pound fresh green beans, washed and trimmed1 tbsp. olive oil3/4 tsp. dried basil1/4 tsp. salt1/4 tsp. freshly ground black pepper 2 tbsp. grated Parmesan cheese Preheat the oven to 425 degrees. Dry the green beans...

32 minutes ago

RickZ

RickZanswered the question How many people were told about portable mesh nebulizers by their Doctor?

Believe it or not, when I asked my pulmonologist about mesh vs jet, they did not know the difference. Hard to believe they are actually treating patients.
HIcopd - Hawaii State CaptainKandy State Captain of South Dakota Nlminotand 3 others also answered the question HIcopd - Hawaii State Captainand 5 others also answered the question

1 hour ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Iโ€™m very pleased that my new exercise plan is going well. Iโ€™ve learned that I have to exercise before I eat breakfast to be the most consistent. I never seem to get into a habit of I try to do it later in the dayโ€”other things just get in the way!  Iโ€™m slowly increasing my duration on the rowing machine so I donโ€™t crash & burn and stop exercising (yup, of course Iโ€™ve done that). I do the same amount of time for 2-3 days consecutively and then increase it by a minute. Rinse & repeat. So far, so good. 

2 hours ago

Matthew1960

Matthew1960asked the question: Has anyone had the spiration valves put in? Which one is better zephyr or spiration?

I've severe emphysema. My doctor has recommended using spiration valve. Has anyone had the spiration valves put in?

3 hours ago

JeanO53

JeanO53answered the question Lotions for oxygen users?

Hi Renee5044 - You've been given great suggestions and advice from Nancy & Kandy. I too have very dry skin. Like Nancy, I use CereVe - the moisturizing cream as well as the itch relief cream. They also carry a petroleum based ointment. I use this …
Kandy State Captain of South Dakota NancyNMKaren Deitemeyer - Florida State Captain also answered the question Kandy State Captain of South Dakota and 2 others also answered the question

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

@Kathleen Henderson
Congratulations on becoming a COPD Foundation Captain! ๐ŸŒŸ 

4 hours ago

Community Announcements

Community Announcementsadded a new article Kathleen Henderson

Welcome our newest COPD Foundation Captain!

6 hours ago

Community Announcements

Community Announcementsadded a new article Commonly prescribed medications increase fall risk and related injuries in people with COPD

Likelihood of falls rises based on number of fall-risk increasing drugs a person is prescribed

Miami (January 14, 2025) - People with COPD experience more falls and related injuries requiring medical care when using common fall-risk increasing drugs, according to a new study. The study is published in the November 2024 issue of Chronic Obstructive Pulmonary Diseases: Journal of the COPD Foundation, a peer-reviewed, open-access journal.

Chronic obstructive pulmonary disease (COPD) is an inflammatory lung disease, comprising several conditions, including chronic bronchitis and emphysema. Symptoms include breathlessness, fatigue and chronic cough. The disease affects more than 30 million Americans and is the fourth leading cause of death worldwide.

Previous research has shown that people with COPD have a higher risk of falling due to increased frailty, impaired gait and the tripping hazard of oxygen tubing. They also commonly experience pain, anxiety, insomnia and other comorbidities, such as diabetes or hypertension. Opioids, benzodiazepines and other medications used to treat these comorbidities and symptoms can increase a person's risk of falling and fall-related injuries.

8 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainLet's make this a terrific Tuesday! No one here will be left behind! Sending positive vibes to everyone here on 360Social! 
Have a very happy day, friends! ๐Ÿ˜€

14 hours ago

Renee5044

Renee5044asked the question: Lotions for oxygen users?

I am having trouble finding body lotions for oxygen user

17 hours ago

NewWoman

NewWoman

Hi just found out about this forum, glad to be here. Diagnosed in 2019 and doing well so far. Iโ€™m ambulatory disabled so difficult to stay active. Hope to learn from all of you. Thanks 

18 hours ago

JeanO53

JeanO53How cold is it when you can see a turkey's breath?!
It was quite cold today - in the teens.  My POC held up quite well in the cold

19 hours ago

John DIP

John DIP

My mother passed of 76 years passed from COPD on 12/29/2014

21 hours ago

John DIP

John DIP

okay

21 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question PBM Therapy (photobiomodulation) as a possible add on therapy in the treatment of COPD?

I did a quick search on PubMed and my takeaway is that the clinical use is in its infancy and may prove to be valuable, but the snake oil people are out in full force to sell you a device that may or may not work. Photobiomodulation: The Clinical …

21 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

MEDITERRANEAN TURKEY BURGERSLemon Dill Yogurt Sauce:1/2 cup plain Greek yogurt 1/2 tbsp. lemon juice1/8 tsp. garlic powder 1/8 tsp. dried dill1/8 tsp. saltTurkey Burgers:19 ounces 93% lean ground turkey1/4 cup sun-dried tomatoes, finely...

1 day ago

joney

joney

Hi everyone I am doing well hope u guys r doing well also๐Ÿ˜

1 day ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Just want to share January 12th was National Pharmacist Day!   How very important in our daily lives that the Pharmacist are.  They have to know the medications and provide information to the people about their drugs and use.  They work very hard for all of us.  Thank you Pharmacist! 

1 day ago

Jazzybean

Jazzybeanasked the question: PBM Therapy (photobiomodulation) as a possible add on therapy in the treatment of COPD?

The National Library of Science had an article highlighting photobiomodulation PBM therapy as a possible adjunct therapy for COPD management. Has anyone else ever looked into it? It sounds as though it can't harm and possibly help? Anyway, I am just …

1 day ago

Jasnee

JasneeHappy Monday everyonee!!๐ŸŽ‰

Today, weโ€™re celebrating Lohri here! ๐ŸŒพ๐Ÿ”ฅ It is a popular Punjabi festival celebrated in northern India. It marks the end of winter and the harvest season. Itโ€™s all about lighting bonfires, dancing, singing, and enjoying treats like til(sesame), gur(jaggery), peanuts, and popcorn.
Wishing you all a warm and happy day!!

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Motivational Monday!
Wake up with a positive outlook, and your day is bound to be absolutely awesome! ๐Ÿ˜ƒ
Set your mind to be productive, and you're sure to get things done.
Have a wonderful day,  friends! ๐Ÿ˜Š

1 day ago

s17c

s17c

Hi everyone, I just this forum today following my father's diagnosis. He was hospitalized for about a month due to pneumonia, there the docs told us that he had severe COPD with 26-30% lung capacity remaining. During hospitalization he was also under ventilation for about 60+ hours. He has been back home now.
The docs told us to keep his saturation usually within 87-92. Initially when he came home (18 days ago) he was on 3.5 lpm.
Last week during a doc visit when they heard he could maintain 95-96 at 0.5lpm to wean him off oxygen now. They also advised us to get him mobile since he has been bed ridden for about 2months and lost of lot of weight and muscle (45kgs now).
Now he can maintain the saturation at 87-92 without oxygen while at rest. But when eating it might drop to 82-86.  Also he has been taking a few steps for the last 3 days, but with 1lpm. At that point he can maintain saturation 82-93.  
The doc told us that he believes that during the next check up a month from today my dad will be able to walk without oxygen support.
However they haven't given him any exercises other that Styrometry and there are no Pulmonary rehab facilities where I am from. 
Any advice for the future, and any idea about the future prognosis would be greatly appreciated. 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœด๏ธPEANUT BUTTER ENERGY BALLSโœด๏ธ1 cup natural peanut butter1/4 cup honey1 tsp. vanilla extract1 1/2 cups rolled oats1 1/2 tsp. cinnamon Pinch saltIn a large mixing bowl, combine peanut butter, honey, and vanilla extract, stirring until smooth. Stir...

2 days ago

Jasnee

JasneeHappy Sunday everyone!!!
We made a spontaneous plan to visit a Gurudwara Dukh Nivaran Sahib located about two hours from our home. It holds a sacred significance as it is believed that anyone who prays at this Gurudwara with a sincere heart is relieved of their pain & suffering. We had been meaning to go for a few weeks, but due to my health, we had to postpone it. This weekend, I finally felt better, so we decided to go. It turned out to be a lovely mini family trip!โค Along with prayers for my health, I also prayed for each one of youโ€”for strength and good health.๐Ÿ’•

2 days ago

Matt88

Matt88

Hello to all, undergoing a diagnosis of copd now and have found this site for information. So far it seems very supportive and informative here. Am glad i found this forum

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends!
Did you know that smiling is good for your health? And, when you smile, that happiness spreads to everyone!
So...put a smile on your face, and you'll always be in a great place!
Enjoy your day! 
Here's a big smile from me! ๐Ÿ˜ƒ

2 days ago

T Town

T Townanswered the question Not typical - Heartbroken - Lack of answers

Finally had a meeting with the pulmonology team. I didnโ€™t see the pulmonologist, they started me with a NP who was very engaging. The net/net was this comment โ€˜90% of the time we know what is happening with a patient in the first 5 minutes. You are not …
Jonnie Korinko (COPDF Manager of Public and Professional Education)Splash4175David Mannino, MD (Chief Medical Officer, COPD Foundation )and 2 others also answered the question Jonnie Korinko (COPDF Manager of Public and Professional Education)and 4 others also answered the question

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.