I've had emphysema for at least 20 years or better. My condition has steadily deteriorated over that period of time. I feel SOB with the least amount of exertion. I've been O2 24/7 for about two years. My usage is set at 3 liters. In addition to my emphysema, I have pulmonary hypertension and right sided heart failure. The things I previously enjoyed doing I no longer find the joy nor stamina in doing. I feel that my next exacerbation could be my last one. Starting to feel that hospice care is the next step for me.
Are there any members out there that are on hospice care who could tell their story as to how they reached that point?
Thank you, Mike