Hi everyone,
I posted last week bout my dad coming home after being in hospital and rehab for almost 3 months. Really no change for the better. Still on oxygen 2l 24/7 but the anxiety if off the charts. Nervous to be home alone, nervous that there hasn't been any improvement and nervous bout getting sick and a flair up happening. He truly believes his next flair up or sickness will do him in. Anxiety meds do absolutely nothing for him anymore. I know difficulty breathing will cause you to be anxious and I know being anxious will make it difficult to breath. It's a double edge sword as I'm sure you all know. He does from zero to 100 at the drop of a hat thinking all worse case scenarios and has even said he will never be the same and maybe he should be in nursing home.
There is no right or wrong answer I am sure. How do you know when it's time to give up so to speak and how do you know when being at home anymore is the right answer unless something happens again. I'm really so nervous and confused. If you agree with his thought process he wonders why you agree. If don't agree with him he think I'm crazy for not seeing how bad he is and how his lung function might be even lower than what was told to him before his last flair up. He was at 17% and very well could be lower. I know everyone is different and many have lived with a lower or as low amount.
But if anything this anxiety and the potential of getting sick again will kill him.
Any advice or support is greatly appreciated.