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15
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End stage COPD and nighttime confusion?
Cheather. I just want you to know that I myself have dealt with this problem. I'm not sure when it started or when it slowed down. I the last year or so, I have had very wierd dreams with people in my family who have passed away and in places that I may …
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6
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How fast can this progress?
You've had a batch of unfortunate things that have really upended your life. Pneumonia, a collapsed lung and then an exacerbation that no one saw coming. And now, needing 5 LPM of O2 for exercise. That's a lot. It's clear that you want to do something, …
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3
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Final Days
KC88 Hello. Seeing someone you love decline in health is never easy. I know that your question was not about yourself, but sometimes when we are caring for someone we can forget to tend to our own needs. I just wanted to encourage you to make sure that …
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4
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End stage. What to expect. And how long left.
My mom was diagnosed with copd about 8 years ago, she is currently 63 years old. In November she was admitted to the hospital with pneumonia. While there, the hospital staff felt that she should go on hospice. At first she was reluctant because she didnt …
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4
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My Grandad is suffering with severe Emphysema and I’m scared
Hello everyone. New member here. I’m looking for comfort, some words of reassurance even though I am totally aware of the severity of the situation My grandad was diagnosed with Emphysema a year ago, after 6-9 months struggling with breathlessness and …
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6
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End Stage-Is it too late to help?
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8
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End-stage? I kinda don't think I have the end-stage COPD.
Hi all, I was just browsing my medical records online (patient portal) and saw "End stage COPD". I googled what is meant by "end-stage" and it said that I should look for exacerbations. I had one last December and it put me in the hospital for 2 days. …
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2
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End stage COPD-more information?
I am sure there are numerous similar questions on this forum but I thought it would be better to provide my own. My Dad is currently living with End of Stage COPD. At this stage he is receiving Palliative care and is on oxygen 24/7. I do not know is …
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7
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Stuck and Stressed Out
Hi everyone, I've created an account because I can not resort to anyone else around me for advice anymore. They either do not know the feeling of having a loved one with end stage COPD and/or just dont know enough to give any meaningful advice. This …
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8
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Morphine , COPD, and the "end"
I am so impressed with the sharing and that everyone feels comfortable talking about a very difficult time. I too had a similar experience and like most of the group, it is extremely difficult my mom passed at home with Hospice too young. What I do know …
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1
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End Stage-caretaker for a dear friend of mine
I have been a caretaker for a dear friend of mine for the last 5 years. He is at End Stage COPD. He is currently in the hospital. They just removed him from the non invasive vapotherm ventilator . He is using wall oxygen at 3 liter per min. He has …
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4
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Mom on Bipap. How long do we have?
My mom went to the hospital 8/3/19. She is on bipap because she refuses to be on a ventilator. She is confused. Her CO2 was over 100 . Im told it should be around 30. I know this is close to the end. But has anyone had someone get better? She has been in …
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3
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What to ask the dr?
I recently found out my mother had COPD. She didn't tell me for a long time and I only found out about it because she was hospitalized this past Christmas and a family friend told me. She then lead me to believe that she was doing a lot better and was …
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35
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Has anyone referred to you as being in "End Stage" COPD?
COPD stands for Chronic Obstructive Pulmonary Disease, a term used to describe chronic bronchitis or emphysema or in some cases both. This disease obstructs airflow to the lungs due to the narrowness of the airways. They fall in four stages, stage I is …
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3
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Questions to ask doctor
Hello. My dad was dx with COPD/Emphysema 5 years ago. He has never wanted me to go to any doctors appointments with him...until now. He feels that he is at the "beginning of the end". I'm just not really sure what questions to ask when I take him …
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5
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End stage copd, are there any new medications that can help?
One other thing... There are a couple of different breathing techniques that will help her, too. One is pursed lip breathing and the other is diaphagmatic breathing. These techniques will help her be more effective with each breath and will allow her to …
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6
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What do the #'s mean again?
Just had my pulmo visit today, spiro test last week. This year vs. last year FEV1 (L) : .65 vs 1.1 or FEV1.FV % 41 vs 38. The Dr said that FEV1 should be about 3! What's confusing is 3 is a number, not a %. Further, he suggested the .65 implied "End …
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