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4
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Recommendations for constant flow oxygen concentrator
New to oxygen therapy. Will be used at night with bipap machine. Diagnosed with severe COPD and emphysema.
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2
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Questions about my struggle with exacerbation
Hi Nicky, I wish that I had a clear answer for you, but unfortunately, everyone is different, and each flare-up may require a different amount of time to get back to normal breathing. From what I read above, it looks like you're worried about when COPD …
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2
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Any thing new on controlling phlegm BEFORE you get too much?
I am still looking for ways to stop phlegm so I don't have to cough it up. I get mine from eating just about anything, not just dairy --- gut to lung problem. Only once in a while does what I breathe cause too much phlegm.
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6
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What over the counter medicine helps breathing
What over the counter medicine helps breathing
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5
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How do you do purse breathing and what is pulmonary rehab
I'm so happy to have found this site. I was diagnosed with COPD about 6 years ago and was just put on inhalers. I have no idea what stage of COPD I have. I was never told about pulmonary rehab. I was diagnosed with lung cancer about 2 years ago. It was …
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5
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Advair-I was given my first inhaler rx by my doc- Advair.
I was given my first inhaler rx by my doc- Advair. I have done some research on it and to be honest I’m not liking the long list of side effects. I know that lists like this can seem scary since they technically have to include every possible thing that …
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4
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Please help-I’ve been diagnosed with COPD with hypoxia.
I’ve been diagnosed with COPD with hypoxia. I’m experiencing SOB, so I measure my oxygen that shows 94. And I was in bed. I also have symptoms like dizziness, brain fog, loss of memory, and weakness all over my body. I measured my Oxygen when I …
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11
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Mixed defect? Obstructive and restrictive
Hello, I had my first appointment with a pulmonologist, and he mentioned that the upcoming PFT I have scheduled will show if I have aspects of a restrictive defect concurrent with the obstructive breathing (he saw this in the spirometry that the …
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1
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Need advice on cough
I have had an annoying cough the last two months and don't know if it's from the COPD or not. My nose seems to run and I need to clear my throat and blow my nose. When I wake in the morning my nose is a little stuffy. I'm going to be getting a new …
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1
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which Supplements for Lung Health actually Work?
I'm looking for advice and resources to help with a long term consistent cough. It feels like a mucus issue most of the time. A version of this was asked already in another chat. I guess I'm covering my bases. I'm late 50s. I haven't been diagnosed …
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3
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CBD Gummies
I've used CBD oil that I make from CBD isolate powder and MCT (coconut oil) for a few yrs. I've found that the most of the places doing studies on it are those that have a stake in its use and thats part of the problem of it not being taken seriously. I …
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1
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OXYGEN TUBING - RETRACTABLE DEVICE
I had a hard time finding something like this and wanted to share with any of you who are looking for a product to help with your oxygen tubing issues. This is a link for a company (Oxygen Management Systems) who is selling a retractable oxygen tubing …
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3
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Ready for an update to my tubing control method?
My O2 supplier delivered supplies this morning. He was impressed with my split loom setup to reduce trip hazards. and how I loop the tube thru the concentrator handle to prevent pulling the tube off of the concentrator. I printed out my instruction sheet …
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19
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Tubing control
I'm not sure if this specific band would work for canula tubing but it is called an Ear Saver. Most of them are headbands for women with buttons but the one in this link could work for men as well if the button were sized correctly - or perhaps a shank …
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6
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Looking for ideas for setting up oxygen tubbing I am currently living in a tri level
setting up oxygen line
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18
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Oxygen Tips and Tricks - What works for you?
Green! Who knew? I needed more hose, and they sent green hoses! Perhaps it's because I joked that I needed lots of hoses because I keep standing on them. These are supposed to be sturdier. Salter's page says: " Salter's 50-FOOT GREEN Oxygen Supply …
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6
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Storing oxygen tube when temporarily not in use.
What do you do with your oxygen tubing when you change from the home system to the portable system? Throwing the tubing on the floor is unsightly. I've been coiling it into a plastic bin until I change back when I get home, but that's definitely not an …
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24
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Retractable Oxygen Tubing: Do you use this?
I have had COPD for nearly 20 years and have fought that coiled medical tubing on the floor each and every day of those 20 years. My mother tripped over hers numerous times finally breaking both of her hips in two separate incidents. I have stumbled over …
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22
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Ohtuvayre from Verona Pharm
Has anyone been prescribed the new nebulized therapy that is supposed to reduce exacerbations and is steroid free, I think, Ohtuvayre from Verona pharmacy? It has had great test results but my doctors here aren’t familiar with it apparently it’s some …
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0
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Check-in: We're Celebrating Pulmonary Rehab!
Have you ever heard of pulmonary rehab and wondered what it was all about? You're in luck! The COPD Foundation is celebrating Pulmonary Rehab Week by bringing you helpful information all month long! If you want to get a sneak peek on what's to come, …
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8
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Is anybody looking at NAD+ (nicotinamide adenine dinucleotide) or NR (nicotinamide riboside)
I have seen this study, and other articles reporting on this study. This does look promising, but more research is surely needed. Wondering why this isn't happening? This is an easy, supplement to get - not some expensive pharmaceutical needing a …
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7
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Possible Emphysema....Scared
A little background on August 19th I went to the ER with shortness of breath, weezing, and a cough. Blood work showed a high d-dimer so ER DR ordered a CT with contrast to look for PE.No PE, but they did see mild pneumonia in the left lower lobe, and …
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3
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Can’t exercise
Exercise is a challege for anyone with a COPD diagnosis which means most everyone on this list. We all do the best we can without causing ourselves additional damage. I've heard there are a few who run marathons but many of us find a walk around the …
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14
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Not typical - Heartbroken - Lack of answers
Welcome T Town.......Sooooo......If you've been following for a few months then I'll guess you've already read the info in the tabs at the top of the page--if not then read--It's helpful. I'm just a patient like yourself so I can't answer your questions …
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6
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Check-In: A Big Month for COPD Conferences!
Obviously, the hottest topic of November is COPD Awareness Month and all the news and events that go along with it. This time of year also brings a lot of respiratory conferences! Since our first World Oxygen Day event on October 2, I’ve been traveling …
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