COPD360social welcomes new member WackyJackie who joins 62,396 current members of our community. Weโ€™re glad you're here!

baileymccrary

baileymccraryHello all! Exciting news: the Supplemental Oxygen Access Reform (SOAR) Act has been reintroduced to Congress! This IMPACT 2025 policy priority is a critical bill that would ensure appropriate access to supplemental oxygen for all who depend on it.

Encourage your lawmakers to support this bill by visiting our Advocacy: Action Center: https://www.votervoice.net/COPD/campaigns/125075/respond

Join our Advocacy | Action Center | COPD Foundation

The COPD Foundation community works with local, state, and federal policy makers to increase research funding, improve care delivery, protect access to treatments, and create policy that improves the lives of those with COPD and related lung conditions. We cannot act alone. Use this COPD Action …

5 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainVery cool new stethoscope research with interesting potential.
https://newatlas.com/medical-devices/lsmp-wearable-stethoscope-patch-respiratory-problems/

Wearable stethoscope patch gets the goods on respiratory problems

While a stethoscope will tell you if someone has a respiratory ailment, it will only share that information in the few minutes it's being used by a trained physician. A new wearable device could paint a much bigger picture of the problem, by monitoring the patient's breathing for days at a time.

1 hour ago

barbreeln777

barbreeln777

practicing the ab breathing I knew about the smell in and purse lips air out but the ab method is new to me.  Sometimes I struggle to get through my chair exercises in the morning,  Should I struggle and force through it when I get breathless or should I stop, rest and recover before I push on?

10 hours ago

  • JeanO53Hi barbreeln777โ€‹ - Interesting question.  My first question is what are you struggling with when doing your chair exercises?  Is it you breathing?  I would say... listen to your body.  Perhaps slow down your pace and your breathing and see what happens.   I don't like the idea of forcing oneself to struggle through.  The idea of "no pain, no gain" really isn't helpful.
    .. On the other hand... A few years ago was in rehab was recovering from hip surgery.  Early in my stay, the Occupational Therapist came to my room right after doing Physical Therapy.  I tried to beg off by saying I was really tired.  The Physical Therapist turned to me and said the only way I was going to progress was if I kept working at it.  So I got up and did the work with the OT and was able to do it.  My "feeling" too tired was psychological not physical.
    .. Which brings me back to the first question of What is the Struggle? Know what you struggling with and figure out healthy ways to move forward.7 hours ago
DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWe've got coffee. We've got tea. We've got juice. Whatever your heart desires. Pull up a chair, make yourself at home, grab your favorite morning beverage,  and join in the fun, here on 360Social! ๐Ÿ˜€

20 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

Recall notice MEDLINE INDUSTRIES, LP - NorthfieldZ-1597-2025There is a potential for open/weak seals on purchased breather pouches used for packaging of select sterile convenience kits.Devices

1 day ago

JeanO53

JeanO53Happy Fluffy Friday!  From the Grant Park Groundhog!
Saw this one the other day on a bridge in the park.  It was trying to cross the road which can sometimes be a challenge.  I watched long enough to see it make it safely to the other side and then disappear now the hill.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœณ๏ธSNOW PEA~RADISH SLAWโœณ๏ธA unique side dish to place on your Easter buffet! Thinly sliced 1 medium red onion and 1 bunch radishes. Soak in a bowl of ice water for 5 minutes. Drain and pat dry.In a medium bowl, whisk together 4 tsp. rice...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from the one and only Johnny Rocket! This picture goes back to the day my sister brought him in the house...The rest is history. 
Today is his 2nd birthday.  HAPPY BIRTHDAY, Johnny Rocket!!! ๐Ÿš€ ๐ŸŽ‰๐ŸŽŠ๐ŸŽˆ

1 day ago

Dirtyknees05

Dirtyknees05

Good morning ppl new to this got diagnosed last yr thro nhs lung check ct.had copd clinic but sp02 was only at 92 and bp was high so nurse wasnt happy doing spiro so not been called bk but was given pump with  chamber but thing is yes i do get out of breath thro my job van driver in and out of van fair bit of walking around i dont want to start using pump as i dont feel i need it just yet.or feel that i i cld make lungs dependant on it later on am i being stupid hopefully some1 understands where im coming from

2 days ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captainanswered the question Hope

Rehab works if you work at it. Every day breeds more confidence for the next day. Be proud of your accomplishments and know that nothing can stop you but your self doubts.
Mike Hess, RRT (COPDF Senior Director of Advocacy & Regulatory Affairs)Karen Deitemeyer - Florida State CaptainHIcopd - Hawaii State Captainand 1 other also answered the question Mike Hess, RRT (COPDF Senior Director of Advocacy & Regulatory Affairs)and 3 others also answered the question

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Adjustable bed not working

If Dr Manninoโ€™s solution doesnโ€™t work, online the manual suggests: 1. Unplug power cord from outlet. Wait 5 seconds, then plug it back in. Perform step 2 within 10seconds of this step. 2. On back of remote, press and hold PAIR button. The PAIR button …
David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question

2 days ago

gamulay56

gamulay56asked the question: Adjustable bed not working

i have a Sleep Science Q-Series Adjustable Base with a Purple mattress (Itโ€™s a hand-me-down so I donโ€™t really know what model/type it is) with a foam topper, but the adjustable base is the real issue here. Last night the remote stopped working. We have …

2 days ago

barbreeln777

barbreeln777

I feel like my COPD is getting worse, I now get short of breath even when I am wearing the oxygen

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Flying with POC

There is also a test - the HAST test (High Altitude Simulation Test) that your doctor could refer you for that would determine if you do need oxygen at altitude. This is a link that explains it: https://www.nationaljewish.org/conditions/tests-pr...
Mike Hess, RRT (COPDF Senior Director of Advocacy & Regulatory Affairs)HIcopd - Hawaii State Captain also answered the question Mike Hess, RRT (COPDF Senior Director of Advocacy & Regulatory Affairs)and 1 other also answered the question

2 days ago

Jdub

Jdub

Well, I'm unhappy. I was prescribed Trelegy and cannot afford it. Any suggestions?
Have a great day!

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

I'm doing better today than yesterday.  There was a large woods fire across the road from my community that burned about 35 acres and at one point jumped the road and burned the back yard of one of the homes in my community!! The smoke was heavy and seeping into the house.  

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿฃ๐ŸŒท**Hoppy Easter and an Early Fluffy Friday!**๐Ÿพ๐Ÿ’

As we head into the holiday weekend, I just want to wish everyone in our amazing COPD360social community a safe, peaceful, and joy-filled Easter - if you celebrate! And if you're just here for the chocolate and the bunny ears, wellโ€ฆ youโ€™re in excellent company. ๐Ÿ˜„

Weโ€™re also hopping a little early into Fluffy Friday mode this week - because letโ€™s be honest, our pets donโ€™t know what day it is anyway. ๐Ÿถ๐Ÿฑ So feel free to post those adorable pics of your sidekicks who stick with you on the good breathing days and the tough ones!

Iโ€™m incredibly grateful for all of you who make this space so supportive, hopeful, and real. Whether you're here to learn, laugh, or just scroll for a moment of peace - thank you for being part of this community. ๐Ÿ’™๐Ÿงก

And speaking of support, donโ€™t forget about a great tool in your COPD toolbox: our Guides for Better Living. They're full of tips for patients and caregivers alike - and they donโ€™t even melt in your Easter basket. ๐Ÿ˜‰

Take care, share those Fluffy Friday pics, and breathe easy this weekend! ๐ŸŒธ

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ•ARUGULA & ROASTED CARROT SALAD๐Ÿฅ•4 cups arugula8 baby carrots, chopped and roasted until tender1/4 cup crumbled feta cheese 1/4 cup pine nuts2 tbsp. olive oilJuice of half a lemonSalt and freshly ground black pepper to taste Place the arugula on a...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHello Thursday, and hello friends! I'd like to take a moment to thank all of our members! We are so glad that you are here! Your participation means alot to all of us here on 360Social! Wishing everyone a pleasant, easy breathing day! ๐Ÿ˜Š

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Is there a list of online pulmonary rehab clinics ?

By the way, do you want an in person site or an online virtual one
Aaron Stillwellstefb1Jean IA State Captainand 1 other also answered the question Aaron Stillwelland 3 others also answered the question

3 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Inspiriting story about what Grace Anne Dorney Koppel and Ted Koppel have been doing. https://www.hopkinsmedicine.org/news/articles/2024/10/on-the-path-to-a-cure-for-copd

3 days ago

Aleida64

Aleida64asked the question: Hope

Hello all. Early days in rehab and noticing changes much to my joy. I wonder if anyone felt like a hero at rehab but not confident out and about and for how long? How did you bring that hope into your day to day? Tina

3 days ago

Gina Hoots, Hootenanny Joy

Gina Hoots, Hootenanny Joy answered the question First visit to the er. Questions about symptoms

Thanks for sharingโ€”I understand how scary this must've been. It's common to experience new or confusing symptoms after quitting smoking or receiving a COPD diagnosis. Your body and mind are adjusting, and sometimes it's tough to know what's related to …

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWhat's cooking at DebbieB.'s house today?
Yellow squash and onions in tomato sauce. 
"Pull up a chair, grab a big bowl.
A good hot meal to soothe the soul." ๐Ÿฅ„

3 days ago

KarinaDK

KarinaDKanswered the question Newly diagnosed with emphysema two weeks ago

45yrcopdasthma so thrilled I found this community. Never knew quitting smoking would feel like this 😆 TonicDk I just got a referral to a lung specialist. Hopefully that will turn out helpful 🤞🏻 And yes, I was curious regarding your …
TonicDkKaren Deitemeyer - Florida State CaptainWildebeestand 3 others also answered the question TonicDkand 5 others also answered the question

3 days ago

KarinaDK

KarinaDKasked the question: First visit to the er. Questions about symptoms

Hi again everyone. Quit a scare for me last night. I was diagnosed with mild copd about a month ago but since then has exeperienced increasing amounts of symptoms. Itโ€™s been extremely difficult for me to understand which symptoms were related to …

3 days ago

Jamie Jarrard

Jamie Jarrard created the event Harmonicas for Health Play-along--Thursday, April 24

Click the following link to register to join: https://copdf.co/H4H-meetups Join us for the Harmonicas for Health monthly play-along! Playing the harmonica can help strengthen your lungs and help with shortness of breath. You need no prior experience in …

3 days ago

Jamie Jarrard

Jamie Jarrard created the event COPD 360 Social Hour--Thursday, April 17

Join us for our monthly, virtual get-together for those living with COPD. We invite you to get to know others in the community, share your experience, and ask questions. Mark your calendars and register by clicking the following link: https://copdf …

3 days ago

Wildebeest

Wildebeestanswered the question Sepsis lung

I can't speak to sepsis as such, although when I was carted off to hospital with severe pneumonia last year they thought I might have sepsis. I was in there for nearly 2 weeks including 2 days in intensive care. What I can tell you is that although I am …
Karen Deitemeyer - Florida State Captaindas23 also answered the question Karen Deitemeyer - Florida State Captainand 1 other also answered the question

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ‘๐Ÿฅ‘CREAMY AVOCADO PIE๐Ÿฅ‘๐Ÿฅ‘Crust:5 tbsp. unsalted butter, melted 1 1/2 cups graham cracker crumbs1 tbsp. sugarPinch saltFilling:2 medium Hass avocados One 8-ounce package cream cheese, at room temperature One 14-ounce can sweetened condensed...

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.