COPD360social welcomes new member Mahalie who joins 61,010 current members of our community. Weโ€™re glad you're here!

Bill Clark - Community Manager

Bill Clark - Community Manager

DO NOT POST ANY TEST RESULTS until you have completed all your tests AND spoken to your own doctor or medical team and gotten a diagnosis! This is for your protection and ours.  Your doctor has access to all your medical records and we do not.  Interpeting partial results can often lead to a incomplete, or inaccurate diagnosis. This can cause you emotional harm and present liability concerns for us.  

Once you have completed your testing and spoken to your doctor we will be happy to help you understand the implications of your diagnosis and help you move forward, If you post any results without going through the proper steps your post will be deleted  and possibly your membership.

4 months ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Don't forget to join LaceUpForLungs on FB where they are promoting exercise for health.  Exercise can very much improve your quality health. Every day we sign in and report what exercise we have done that day. .  

53 minutes ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Good morning happy Fluffy Friday everyone! These are my daughters dogs Zoe and Nova!! I can't have animals due to animal dander allergy.  All 4 of my children of dogs and one has a 2 cats.  Anyway have a good day

1 hour ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State CaptainWhat lind of healthcare system allows this to happpen?                                                              https://www.cnbc.com/2024/11/22/us-fda-reportedly-finds-widely-used-asthma-drug-impacts-the-brain.html

U.S. FDA finds widely used asthma drug impacts the brain, Reuters reports

The researchers found that the drug, sold under the brand name Singulair, attaches to multiple brain receptors critical to psychiatric functioning.

2 hours ago

Wildebeest

Wildebeestanswered the question Swallowing and breathlessness

Thanks, all. Yes, I am doing the pursed lip breathing and it does help. In fact it was while I was doing it, and concentrating on my breathing, that I noticed I was doing the swallowing and then I started looking out for it. Like so many things, you can …
BRADENDavid Mannino, MD (Chief Medical Officer, COPD Foundation )Kristen Szymonik, BS, RRT, AE-C (Assistant Director of Education) also answered the question BRADENand 2 others also answered the question

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from our good friend Luke Rossi, aka Mr. Deb O. Naire, who is showing off the Christmas bowtie his Dad bought for him. 
Have a wonderful day, friends! ๐Ÿ˜Š

6 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Let's think about Thanksgiving leftovers. What do you do with yours? Please let us know what you do with your leftovers!Here are just a few ideas from DebbieB.'s Kitchen...1. You can make a casserole by layering stuffing, turkey, and vegetables in a...

12 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Has anyone heard of the POC - O2 Concepts Oxlife Liberty?

Noise level is OK for pulse but loud for continuous flow. I use it at 2 continuous at night and put it in a carpeted closet where I shut the door most of the way, and then shut the bathroom door that separates closet from bedroom. Window in bathroom is …
Dee SreeMike Hess, RRT (COPDF Senior Director of Public Outreach and Education)JeanO53and 3 others also answered the question Dee Sreeand 5 others also answered the question

14 hours ago

Kerry p

Kerry p

Hi all
Sorry I forgot to mention that mom is basically just sitting or in bed. Any walking or simple washing and her oxygen drops to the 70s, and her heart rate can be 138. Is anyone else experiencing this with a friend or loved one? Thankyou.

15 hours ago

Kerry p

Kerry p

Hi to everyone.
My mom has copd that is severe, and I would be grateful to speak to anyone in my position. Mom is 76 and is showing deteriation that I am finding hard to deal with.

15 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Sorry for spell-miscorrect. Itโ€™s a COUPON for $0 copay. 

18 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Wowโ€”saw my lung doc at ucsf yesterday. Sheโ€™s starting me on Trelegy. I tried to pick it up yesterday but they said it wasnโ€™t ready. They said it was a 60 day supply but my MD ordered a 30 day supply, so we can be sure it works for me. 


I looked it up online and see why the pharmacy (Costco in SF) may be confused. It says 60 count, which refers to 60 blisters for a 30 day supply. 


When I pick it up, will show them where it says 60 count refers to the blisters for a 30 day supply. 


I was also able to find a couple. which I believe will make my copay $0!

18 hours ago

cyndyluu2u

cyndyluu2u

Thank you all for the nice comments about my sign! My plans are to make a more weather resistant version so I can put it in my front yard.

18 hours ago

km3sm

km3smanswered the question cannot Get dressed without completely exhausting myself. The hardest part is putting on my socks. I

I totally get where you're coming from. Iโ€™ve had my own struggles with breathlessness, even just doing simple tasks like walking up stairs or bending over. It can be tough when the tests come back unclear, and itโ€™s frustrating not having a solid …
David Mannino, MD (Chief Medical Officer, COPD Foundation )das23Caroline West Virginia State Captainand 1 other also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 3 others also answered the question

19 hours ago

km3sm

km3smanswered the question Developing a retractable oxygen reel

When it comes to hand crank retractable reels, people usually care a lot about durability, so making sure it can handle some wear and tear is key. A smooth retraction mechanism is super important tooโ€”nothing worse than a reel that gets stuck or isnโ€™t …
Demianstroublejim1945Mik786and 2 others also answered the question Demianstroubleand 4 others also answered the question

19 hours ago

BRADEN

BRADENanswered the question I have a few questions. I'm new here.

I'm really sorry to hear that you're going through such a tough time with your COPD. The coughing and choking at night must be incredibly exhausting and distressing. It sounds like flare-ups can be pretty intense, and I know a lot of people find it …
David Mannino, MD (Chief Medical Officer, COPD Foundation )WildebeestCaroline West Virginia State Captainand 2 others also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 4 others also answered the question

19 hours ago

BRADEN

BRADENanswered the question Morning Headaches... Mild COPD

Hey, Iโ€™ve had similar issues with headaches after poor sleep, and Iโ€™d say itโ€™s likely more about the sleep than the COPD itself. I used to get by on 5 hours a night, but it definitely caught up with me in the form of morning headaches. I ended up looking …
David Mannino, MD (Chief Medical Officer, COPD Foundation )WildebeestJeanO53and 3 others also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 5 others also answered the question

20 hours ago

Misty Green COPDF Research

Misty Green COPDF ResearchCOPD Foundation Research is recruiting for the US Cough study! 

23 hours ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Good morning Thursday!! Nov21st this month is flying by.  November is Copd Awareness Month.  The month of orange.  I hope everyone is having a easy breathing day!  

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

We hit and passed the 61,000 member mark! 
Caroline West Virginia State Captainโ€‹...YOU WERE RIGHT!!! ๐ŸŒŸ 

1 day ago

Wildebeest

Wildebeestasked the question: Swallowing and breathlessness

My breathlessness typically does not present as severe panting or gasping (unless I am exercising to within an inch of my life!). I typically feel that however deeply I breathe in I cannot get enough air. That's what drove me to the doctor years ago. I …

1 day ago

LFAOMGA

LFAOMGA

The first snow is happening right now here in Silver Lake, Ohio. It looks absolutely beautiful as it gently covers the ground.  

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday! We hope youโ€™ve learned alot here on our website. Once you become educated, please pass along what you have learned. 
November is COPD Awareness Month! Keep on learning. Keep on going! ๐Ÿ’ช 

1 day ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Thursday is The Great American Smoke Out.Alway the 3rd Thursday of November. This gives those that smoke a opportunity to quit. There are state agencies that can help!!

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸฏHONEY BROWN SUGAR HAM GLAZE๐Ÿฏ2 cups packed light brown sugar 1 cup honey1/2 cup Dijon mustard 2 tbsp. butter 2 tbsp. cider vinegar Place all ingredients in a medium saucepan. Bring to a simmer over medium-high heat, stirring to break up any lumps....

1 day ago

1fatfanny

1fatfannyasked the question: Morning Headaches... Mild COPD

Hi All, I have mild COPD, FEV1 around 90% and mild hypertension around 135/95. My Oxygen sats average 98% during the day and 94% at night (night time reading might not be a very accurate) I have a good exercise tolerance / non-smoker / healthy BMI. I …

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Trellegy

You have your answer from Dr. Mannino! I just wanted to ask you to keep us informed about what you find out.
David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State CaptainI've got my orange and blue on today to celebrate World COPD Day.

1 day ago

Pam2024

Pam2024

Does anyone have eye problems because of 24 hour oxygen use?

1 day ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question I have COPD HIW do I get personal guidance from your research

Please go through our learn more section above. When you have specific questions you can post and we can try to answer. Everyone is unique, as are everyone's COPD journeys.

1 day ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.