COPD360social welcomes new member TerryC who joins 62,071 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Honoring Those Weโ€™ve Lost โ€“ Carrying Their Spirit Forward

In our COPD360social community, weโ€™ve shared stories, struggles, laughter, and hope with so many incredible friends. But along the way, weโ€™ve also felt the deep loss of those who are no longer with us. Their absence leaves a voidโ€”one that we feel in every conversation, every shared experience, every moment of support.

While they may not be here physically, their spirit remains in the wisdom they shared, the encouragement they gave, and the kindness they showed. The best way we can honor them is by continuing what they startedโ€”lifting each other up, offering advice, sharing our breathing journeys, and keeping this community strong.

Letโ€™s keep their legacy alive by stepping up, just as they would have. Letโ€™s offer hope to the newly diagnosed, comfort to those struggling, and a listening ear to those who need it. COPD360social isnโ€™t just a community; itโ€™s a family. And like any family, we carry on in the spirit of those we love and miss.

They may be gone, but through us, they will never be forgotten. ๐Ÿ’™

6 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

The chair yoga today was called " Go to Bed" so I waited until this evening.  I think that it was a little strenuous for a bedtime routine, but we will see how I sleep.

4 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Recommendations for constant flow oxygen concentrator

So much depends on what your needs are. Do you need O2 just for sleeping? Do you need O2 for altitude? Exercise? What flow rate for each activity & for sleep? I just got this new machine and like how quiet it is. Itโ€™s a DeVibliss 5 liter quiet unit …
Jonnie Korinko (COPDF Manager of Public and Professional Education)Coach Brandon - Community Managerdas23 also answered the question Jonnie Korinko (COPDF Manager of Public and Professional Education)and 2 others also answered the question

9 hours ago

Nicky_SE

Nicky_SEanswered the question Questions about my struggle with exacerbation

Thanks
Jonnie Korinko (COPDF Manager of Public and Professional Education) also answered the question Jonnie Korinko (COPDF Manager of Public and Professional Education) also answered the question

12 hours ago

baileymccrary

baileymccraryHello all! On March 5, 74 COPD and BNTM patients, caregivers, loved ones, healthcare providers, and COPD Foundation Team members traveled to the United States Capitol in Washington, D.C. to meet with our lawmakers and urge their support for our policy agenda. We had 105 meetings with offices representing 26 states, 53 House districts, and 52 Senate districts. We spoke with our lawmakers about three critical priorities:
- Co-sponsor H.R. 783 / S. 248 to enact permanent Medicare coverage for virtual pulmonary rehabilitation.
- Co-sponsor the Supplemental Oxygen Access Reform (SOAR) Act to ensure Medicare patients have access to essential oxygen therapy.
- Protect FY26 NIH funding and promote innovative COPD treatments by prioritizing early disease research at NHLBI and patient-focused outcome measures at FDA through appropriations report provisions.

We are incredibly proud of our team of advocates and the progress we made together for lung health in Washington, D.C. If you would like to virtually support IMPACT 2025, you can urge your lawmakers to support our policy priorities by visiting our Advocacy Action Center: https://www.votervoice.net/COPD/Campaigns/123363/Respond

We want to extend a special thank-you to our sponsors who made IMPACT 2025 possible! Thank you to Chiesi USA, Inc., Insmed Incorporated, Sanofi/Regeneron, Theravance Biopharma US, Inc., Verona Pharma, and Viatris. Your support is greatly appreciated!

13 hours ago

Mike Hess, RRT (COPDF Senior Director of Public Outreach and Education)

Mike Hess, RRT (COPDF Senior Director of Public Outreach and Education)answered the question Any thing new on controlling phlegm BEFORE you get too much?

Hi, Richard! There's a lot of good information at the links Vinny provided. Unfortunately, once the airways are injured enough to get to the point where they're always making too much mucus, it's hard to turn back that clock. Making sure you're drinking …
Vinny M also answered the question Vinny M also answered the question

14 hours ago

Jonnie Korinko (COPDF Manager of Public and Professional Education)

Jonnie Korinko (COPDF Manager of Public and Professional Education)answered the question What over the counter medicine helps breathing

Hi James D 801, Like many who commented before me, I would caution you against treating symptoms with over-the-counter (OTC) medicines without explicit directions from your medical provider. Not only could it mask symptoms of a serious problem that …
David Mannino, MD (Chief Medical Officer, COPD Foundation )DebbieB.-Connecticut State CaptainCaroline West Virginia State Captainand 2 others also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 4 others also answered the question

14 hours ago

Jonnie Korinko (COPDF Manager of Public and Professional Education)

Jonnie Korinko (COPDF Manager of Public and Professional Education)answered the question How do you do purse breathing and what is pulmonary rehab

Hi there Cally k! I'm sorry to see that you've been having symptoms, but I'm glad that you're here. Here is some information below that may help answer some of your questions: Breathing techniques: Here is a video that teaches how to perform …
Vinny MjoneyKaren Deitemeyer - Florida State Captainand 1 other also answered the question Vinny Mand 3 others also answered the question

14 hours ago

Nicky_SE

Nicky_SEasked the question: Questions about my struggle with exacerbation

Hi COPD community I was diagnosed with COPD about 10 years ago and 19 days ago I had my second exacerbation in 17 months. Thanks to the advice I received from you wonderful people during my first visit to this platform, I went to my doctor and asked …

15 hours ago

Community Announcements

Community Announcementsadded a new article Statins, aspirin may impact muscle health in smokers

New study suggests statins protect chest muscles, while aspirin increases chest muscle loss

Miami (March 13, 2025) โ€“ For current and former smokers, statins may reduce the amount of chest muscle loss, while aspirin may contribute to increased chest muscle loss, according to a new study. The study is published in the January 2025 issue of Chronic Obstructive Pulmonary Diseases: Journal of the COPD Foundation, a peer-reviewed, open-access journal.

Many people who are current or former smokers are prescribed statins to manage high cholesterol and aspirin to manage heart disease. Research has shown that current or former smokers experience increased skeletal muscle loss, especially in people with COPD.

COPD is an inflammatory lung disease, comprising several conditions, including chronic bronchitis and emphysema, and can be caused by genetics and irritants like smoke or pollution. The disease affects more than 30 million Americans and is the fourth leading cause of death worldwide.

17 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ‘COTTAGE CHEESE~AVOCADO TOAST๐Ÿฅ‘1 slice multigrain OR whole wheat toastHalf of a small, ripe avocado 1/3 cup low-fat cottage cheeseSalt and freshly ground black pepper Pinch chopped chivesDrizzle honeyPlace toast on a small plate. Mash avocado onto...

17 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday, friends! 
No worries here on 360Social! Plenty of educational material, and folks who have good advice to follow. We never stop learning! Keep the happy thoughts flowing, and have a wonderful day! ๐Ÿ˜€

22 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Itโ€™s nice that Inogen makes the G5 fairly easy to replace the broken barb as well as the sieve beds. 

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Well, have had a challenging time. I broke the metal barb of the Inogen One G5 and have to replace it. I hadnโ€™t realized it was as fragile as it is.  A new one is scheduled to arrive tomorrow. 


Also the brand new stationary concentrator I received needs maintenance and keeps beeping. I put it in a spare room but opened a window but can still hear the beeping. A new replacement will be arriving soon and Iโ€™m to ship this one back with a postage-paid provided label. 

1 day ago

SideshowLou

SideshowLou

Hi. Iโ€™m new here. Been diagnosed for a year and just had my first real exacerbation. It really scared me but am now starting to feel better.


I get panicky when I feel I canโ€™t breathe and then itโ€™s a circle. Any tips for this?

1 day ago

patty a

patty a

since I started Trelegy, using a c-pap is ineffective.

1 day ago

Bob_NC

Bob_NC

Last Friday my extended exacerbation suddenly ended. It had lasted six weeks. Previously, my exacerbations generally lasted 9 - 14 days. This was the first time I didn't respond to antibiotics (20 days) and prednisone (24 days). I'm just glad it ended. I have a pulmonary function test scheduled in May to see if I have changed stages.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŸข๐ŸŸข๐ŸŸขSPRING PEA SALAD๐ŸŸข๐ŸŸข๐ŸŸข4 cups fresh or frozen green peas, cooked only until bright green and somewhat firm, and drained2 tbsp. olive oil 2 tbsp. finely minced onion 1/2 tsp. salt1/4 tsp. freshly ground black pepper 1 tsp. white wine vinegar 3...

1 day ago

Tg10

Tg10

Good morning, i just seen the pulmo yesterday rehashing a ct i had last week.  It showed some foggy spots on the bottom of both lungs that were not there 1 year ago.  I was sick with the flu and was finished the antibiotics the morning of the ct scan.  The doctor thinks it could be from that but i need to do another ct in 6 weeks to rule out cancer.  I hope the spots were from being sick.  My wife is still fighting the same respiratory illness that i had.  

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Wednesday, friends! Keep those positive thoughts flowing! A happier person is a healthier person! ๐Ÿ˜Š
Have an awesome day! You deserve it! ๐Ÿ˜€

1 day ago

BarbGreengrass

BarbGreengrasscommented onQuestions about Portable Oxygen Concentrators

Iโ€™m interested in the progenitor cell trial for emphysema which had very promising results. ...

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

These chair Yoga people know what they are doing.  Today was a short 12 minute wonderful feeling core stretching routine.

2 days ago

Jim Martin

Jim Martin

Dad is keeping his COPD under control right now. Seems to be doing good as well.

2 days ago

Community Announcements

Community Announcementsadded a new article Thirty-three centers join new Bronchiectasis and NTM Care Center Network

Network facilitates access to high-quality, specialized patient care for bronchiectasis and NTM lung disease

Miami (March 12, 2025) โ€“ The Bronchiectasis and NTM Association has accepted 27 Care Center and six Clinical Associate Center sites in 23 states and the District of Columbia into the new Bronchiectasis and NTM Care Center Network (CCN).

The CCN aims to facilitate access to specialized care and support for the hundreds of thousands of people with bronchiectasis and nontuberculous mycobacterial (NTM) lung disease.

โ€œAs the prevalence of bronchiectasis and NTM lung disease grows, it is even more important for us to create this Care Center Network to improve access to high-quality, specialty care and resources patients need,โ€ said Doreen Addrizzo-Harris, M.D., Chair of the CCN Steering Committee. โ€œThe CCNโ€™s innovative, nationwide network will help us achieve our goals of improving care and quality of life for those with these conditions, as well as advancing toward a cure.โ€

2 days ago

Community Announcements

Community Announcementsadded a new article People with COPD and arthritis have an increased risk of death

New study suggests people with arthritis should also be screened for COPD

Miami (March 11, 2025) - People with chronic obstructive pulmonary disease (COPD) and arthritis have a higher risk of death than people with arthritis who do not have COPD, according to a new study. The study is published in the January 2025 issue of Chronic Obstructive Pulmonary Diseases: Journal of the COPD Foundation, a peer-reviewed, open-access journal.

COPD is an inflammatory lung disease, comprising several conditions, including chronic bronchitis and emphysema, and can be caused by genetics and irritants like smoke or pollution. The disease affects more than 30 million Americans and is the fourth leading cause of death worldwide. Arthritis, or joint inflammation, is a leading cause of disability among American adults.

This new study analyzed data from more than 11,000 individuals in the United States from the National Health and Nutrition Examination Survey (NHANES) 1999-2018 who self-reported having arthritis. The study cohort included 1,795 participants with COPD and 9,503 without COPD.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ˜€HEALTHY DIP FOR FRUIT๐Ÿ˜€1 cup plain Greek yogurt 1 tsp. vanilla extract 1/2 tsp. cinnamon1 tbsp. pure maple syrupZest of half a lemonPlace all ingredients in a bowl. Gently whisk together. Serves 4 ๐Ÿ‘ฉ๐Ÿผโ€๐ŸณIdeas for fruits to use as...

2 days ago

gary j williams

gary j williams

Iโ€™ve been struggling over the past few weeks. I was diagnosed with copd probably 10 years ago. Unfortunately it didnโ€™t stop me from continuing to smoke as I have done since I was 9 years old. I am now just turned 60 and 4 months ago I had my first ever flare up. I ended up in hospital for 8 days. I couldnโ€™t even brush my teeth without oxygen, so really very scary for me and my family.
The night I was admitted to hospital I stopped smoking, which I wish Iโ€™d done years ago! The doctors tested my lung function in hospital but I told them that I was still not recovered from the infection so the results will be bad. They didnโ€™t listen and I was confirmed to now be very severe. Once out of hospital my health improved, infact I felt better than I had in a long time, but I then caught a viral cold and since then my health has got worse. Itโ€™s been 4 weeks and I am still finding it harder, mornings are worse with lots of mucus and coughing.
I hope this will improve and itโ€™s just the viral cold putting me back and Iโ€™ll get a bit better soon, but Iโ€™m scared it wonโ€™t improve and this is my final stages.
Each day I try and think positive and I am still hopeful itโ€™s just a temporary stage.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainSometimes having COPD can mean alot of time spent indoors. Did you know that growing houseplants can work wonders for your emotional well being? There are even houseplants that are good for the lungs. 
Do your research to see which houseplants are right for you. Enjoying houseplants can make it easier to be stuck indoors! 
Have a very happy Tuesday, friends! ๐Ÿชด

2 days ago

Richard DJ

Richard DJasked the question: Any thing new on controlling phlegm BEFORE you get too much?

I am still looking for ways to stop phlegm so I don't have to cough it up. I get mine from eating just about anything, not just dairy --- gut to lung problem. Only once in a while does what I breathe cause too much phlegm.

3 days ago

Richard DJ

Richard DJanswered the question which Supplements for Lung Health actually Work?

PhilM67, I too have a phlegm problem as you describe. I am still looking for what will stop or greatly reduce the phlegm. I get mine from eating, not usually from what I breathe. What can control the gut to lung action? I have written before that I use …

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.