COPD360social welcomes new member survivor 101 who joins 61,356 current members of our community. Weโ€™re glad you're here!

Bill Clark - Community Manager

Bill Clark - Community Manager

DO NOT POST ANY TEST RESULTS until you have completed all your tests AND spoken to your own doctor or medical team and gotten a diagnosis! This is for your protection and ours.  Your doctor has access to all your medical records and we do not.  Interpeting partial results can often lead to a incomplete, or inaccurate diagnosis. This can cause you emotional harm and present liability concerns for us.  

Once you have completed your testing and spoken to your doctor we will be happy to help you understand the implications of your diagnosis and help you move forward, If you post any results without going through the proper steps your post will be deleted  and possibly your membership.

5 months ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday, friends!
Don't forget to cover your face with a scarf or a mask before venturing out into the cold! 
Keep a throw blanket, some gloves, and bring some bottled water when you go out in the car.
Take good care of yourselves. You are definitely precious cargo! ๐Ÿ˜Š

4 hours ago

survivor 101

survivor 101commented onImproving Communication with Your Health Care Team

Thank you for the article/info....

8 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Prednisone

I am a patient and not a doctor, so take this information with that in mind. I did find that long term prednisone use is associated with a type of skin cancer called Kaposi sarcoma. I did not find any information about the frequency of this cancer …

12 hours ago

PamK

PamKasked the question: Prednisone

I have been reading that taking Prednisone long term can cause cancer. I have been on it for 6 years. My doctor never told me this. Have you heard of this? Worrie

13 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

CRANBERRY & GOAT CHEESE CROSTINI20 (1/4-inch thick) slices baguette [long, thin crusty loaf of French bread]2 tbsp. olive oil, plus more for drizzling1/2 cup canned whole-berry cranberry sauce1 tsp. minced fresh rosemary 1/4 tsp. grated orange...

16 hours ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Happy Wednesday 360 and a New Year begins. I hope this finds everyone well and easy breathing.  Want to wish you all a year filled with health, happiness, and new adventures. .  Let the New Year begin were ready!! Happy New Year 2025!!

20 hours ago

SKP

SKP

They are discharging me today. I had COPD exeracernation with H3flu. Came in 26th of course they are in hurry to get out. Came in 911 no one to pick me up. They donโ€™t want to pay for Uber  I hate discharge from hospital never done well. Iโ€™m oldRN itโ€™s not hard. Trying to get out before football game I want to see Texas play Iโ€™m from Texas in Tampa  donโ€™t care anymore why should we no one cares we are old just throwing to streets. Happy new year 

21 hours ago

Airplane

Airplane

Healthy New Year to us ALL!!!๐Ÿ˜˜

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHAPPY NEW YEAR, 2025!!!
May this year be your best year ever! Sending everyone my Blessings! ๐Ÿ˜€

1 day ago

Shazam

Shazam answered the question Tightness in my throat

he put me on the virtual ward and understood why I didnโ€™t want to risk going on the wards Itโ€™s not got worse than what it was but itโ€™s not gone away either Iโ€™m going to ring him again as soon as they open after the new yr I understand why you would say …
David Mannino, MD (Chief Medical Officer, COPD Foundation )brydyNancyNMand 1 other also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 3 others also answered the question

1 day ago

das23

das23

HAPPY NEW YEAR!!!!!๐ŸŽ‰๐ŸŽŠ

1 day ago

GAnne

GAnneanswered the question May change Inhalers

Dr Mannino I have a Medicare Advantage plan, I donโ€™t have a copay, my insurance told me today after I paid the 195$ deductible I had to pay 20% of the cost of 649$a month. I canโ€™t get Medicare until I reach the age 65, I came out on disability for …
Karen Deitemeyer - Florida State CaptainDavid Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question Karen Deitemeyer - Florida State Captainand 1 other also answered the question

1 day ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota My daughter and grands came tonight to celebrate New Year's Eve with me. Brought me hot fudge
 I had my hat on for me not knowing when they came door with hats whistles.  We did a dance routeen on tic tox bit granddaughter not posting it. Was very much fun. So happy they thought of me this night brought happiness!! Happy New Year 360!!! 

1 day ago

Flamingo lady

Flamingo lady

Happy new year to you all , thank you all so much for this group , it has helped me greatly โคAmelia x

1 day ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Soreness and extreme tenderness in chest muscles

Not normal. Need to be evaluated.
DebbieB.-Connecticut State CaptainJasneeShazam and 3 others also answered the question DebbieB.-Connecticut State Captainand 5 others also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ”ด๐ŸŸ ๐ŸŸกEASY PARTY PUNCH๐ŸŸก๐ŸŸ ๐Ÿ”ด4 cups cranberry OR cranberry raspberry juice2 cups pineapple juice Half a can frozen lemonade OR limeade concentrate4 cups ginger ale3 cups ice cubesLemon and lime slices, and assorted berries for garnishCombine the...

1 day ago

GAnne

GAnneasked the question: May change Inhalers

I found out that the trelegy inhaler I am using is increasing in cost as of tomorrow from $35-$130. This is due to the no donut hole. So I have reached out to the insurance company to see if they will change the tear for me from a tier 3 to a two so I …

1 day ago

Jasnee

JasneeHappy New Year everyoneeee!!
Iโ€™m really excited about spending 2025 with the wonderful new family this community has given me. Wishing you a year filled with endless joy, exciting adventures, and good health. Cheers to a fantastic year aheadโ€”together!๐Ÿ’›โค

1 day ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captain

Best wishes to all in the new year.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question When is a chest infection an exacerbation ???

Hope you recover quickly, Adam!
Shazam WildebeestFlamingo lady and 7 others also answered the question Shazam and 9 others also answered the question

1 day ago

Jeanette Sue

Jeanette Sueasked the question: I am looking at using Oxy-View glass frames.

Does anyone use Oxy-View oxygen therapy glasses. If so, do you like them? Are they purchased directly from the company. Any info will be greatly appreciated. Thanks!

1 day ago

Shazam

Shazam answered the question COPD: Does anyone use a fan to help them breathe?

I use a fan even when itโ€™s cold outside, my heating is on low because the heat affects me more, I mush prefer the colder months here in the UK When Family come into my house they complain how cold it is and ask why I have my fan on , I also get periods …
Kandy State Captain of South Dakota MaisyCaroline West Virginia State Captainand 6 others also answered the question Kandy State Captain of South Dakota and 8 others also answered the question

1 day ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Happy Tuesday and Happy New Year's Eve!! 2024 is almost gone and ready for the next year. I hope everyone spends the Eve safely but enjoy yourself. "May love and laughter fill your year!  "Wishing you blessings in 2025"!!

1 day ago

Jasnee

Jasneeanswered the question Chest pain when I breathe or cough

Hi Shazam ! My doctor told me that the chest pain was due to viral infection which worsened my ongoing lung condition (ABPA). So because of that I was having chest pains. He had adviced me inhaler twice a day to deal with the infection. Since the …
Shazam cellar Caroline West Virginia State Captainand 5 others also answered the question Shazam and 7 others also answered the question

2 days ago

Shazam

Shazam asked the question: Tightness in my throat

Hi everyone and merry Christmas Iโ€™m getting worried that my emphysema has got much worse I have a lung capacity of 27% and recently I have had tightness in my throat and allot more breathless than my normal I had the doctor out he thought my throat …

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWelcome to the final day of 2024!
No New Years resolutions for me. I set my goals on a daily basis, and check off my accomplishments. 
I hope the new year brings lots of goodness to each and every one of you.
Happy Tuesday, friends! ๐Ÿ˜€

2 days ago

GregEvans

GregEvans

Oh and Iโ€™m recovering from a spinal fusion as well, itโ€™s been 4 months and tonight I could barely walk 2 blocks without the worst pain ever. Iโ€™m having quite the holidays this yr

2 days ago

Hoping to live

Hoping to liveanswered the question Advocating Cobb county Ga. Medical outdoor burn ban

I see these messages are several years old. Is there still interest in having clean air in Cobb
dwbirk45VirgeKaren Deitemeyer - Florida State Captain also answered the question dwbirk45and 2 others also answered the question

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.