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6
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Possible Emphysema....Scared
A little background on August 19th I went to the ER with shortness of breath, weezing, and a cough. Blood work showed a high d-dimer so ER DR ordered a CT with contrast to look for PE.No PE, but they did see mild pneumonia in the left lower lobe, and …
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3
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Can’t exercise
Exercise is a challege for anyone with a COPD diagnosis which means most everyone on this list. We all do the best we can without causing ourselves additional damage. I've heard there are a few who run marathons but many of us find a walk around the …
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6
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Check-In: A Big Month for COPD Conferences!
Obviously, the hottest topic of November is COPD Awareness Month and all the news and events that go along with it. This time of year also brings a lot of respiratory conferences! Since our first World Oxygen Day event on October 2, I’ve been traveling …
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5
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Virtual Pulmonary Rehab - Have you tried it?
Hello Friends! I hope you are all doing well today! We talk a lot about pulmonary rehab and the benefits of the exercise and education that come along with it, but like so many things affected by social distancing, those programs might look a little …
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21
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Ohtuvayre from Verona Pharm
Has anyone been prescribed the new nebulized therapy that is supposed to reduce exacerbations and is steroid free, I think, Ohtuvayre from Verona pharmacy? It has had great test results but my doctors here aren’t familiar with it apparently it’s some …
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9
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Sleep-Does anyone have sleep decreased on an inhaler?
I just switched from Trelegy to Adavir Diskus (250/50mcg) primarily due to the cost of the two. Trelegy was $47 a month and up to $250 when I hit the gap in August vs $8 a month for the Advair and I won't hit the gap next year unless something drastic …
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4
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Should I get a 2nd opinion?
You have features of both COPD and asthma ( like about 40% of COPD patients). The normal DLCO is a good sign. You do have evidence of air trapping/ emphysema (high RV/TLC). Trying bronchodilators ( probably with ICS) seems reasonable. I don't think a …
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3
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Prednisone-I have been reading that taking Prednisone long term can cause cancer.
I have been reading that taking Prednisone long term can cause cancer. I have been on it for 6 years. My doctor never told me this. Have you heard of this? Worrie
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2
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Stiolto Respimat-Has anyone else had problems using Stiolto Respimat
Has anyone else had problems using Stiolto Respimat. Problems start about 3 days after starting this inhaler. Around 5pm i start feeling better.
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7
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Trelegy-Anyone notice a change in their voice on this medication.
Anyone notice a change in their voice on this medication. It works well for me. But, i voice is getting worse. I guess it's time to go to ENT doctor.
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3
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Pulmonologist questions next visit thoughts
I visited the pulmonologist for a consultation. A little surprised at the lack of masking. Says seems more like asthma and my lungs sounded good. I don't think he had my medical records but I am not sure and am scheduled for pulmonary testing next month. …
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11
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Any one on dupixenr yet? What are your thoughts. Thank you.
If anyone is like me and unable to do a good job of injecting himself/herself, try to find someone else to inject you. So far, every time H has injected me, I’ve gotten a full dose with NO drips, no leaking of any medication and no bruising. When I …
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10
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Trelegy problem
Hello, I tried posting this before, but it disappeared, so I apologise for any duplication. Trelegy makes me gag, retch, and worse. It takes some time to recover. Has anyone else had this problem? I would appreciate any advice. Thanks!
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10
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Who works full time?
I work full-time. I sit about half the time, and half the time I am rushing around. I walk about 5-8 miles a day at work. I work with people directly. Sometimes I work 7 days in a row. I am moderate/severe with an FEV of 47%. I am not on oxygen. My SP02 …
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9
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Ohtuvayre ??? Any feedback would be helpful!
My doc ordered a new vile for my nebulizer called Ohtuvayre. New drug so not too much info on it. My doc told me to take it WITH all my other viles!. I already take Yupelri & Albuterol & Budesonide &Formoterol in one day in my nebulizer called Ohtuvayre. …
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2
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How Can I Reduce or Eliminate My Chect Cavity Pain
Hello. New user here. I have have stage 1 COPD that was stable and very mild (pretty much no symptoms the vast majority of the time) for 18 years. I had an exposure that finally reduced my function somewhat. It's still being called stage 1, but now I …
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9
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Questions to ask Pulmonologist
I have emphysematous changes as per my last CT so I was keen to see if there was in any impact on my lung function. As Dr Mannino suggested previously the results have turned out to be normal. I know it will progress and I am doing everything in my …
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4
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Need some hope.
Hi Greenie, I'm not a clinician, and only clinicians can crunch your numbers... However, you do seem to have many of the lifestyle factors that are regularly discussed as negatively impacting COPD... Current smoker / obese / sedentary... The clinicians …
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4
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Home Testing of PEF / FEV1
Is anyone using a Digital Peak Flow Meter for Home Testing of PEF / FEV1 Had a full 45 minute test at my doctor's office last week and my FEV1 has improved from 35 % to 42 % I'm looking at these on Amazon. https://amz.run/9uSg https://amz.run/9uSi
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0
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9
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twisting cannula
Why do some cannula twist until it almost strangles me, but another hangs straight all day? Same brand and type cannula, same connection thingie to the 50' tubing. My head doesn't spin like the Exorcist. Can anyone explain this to me???
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0
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16
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Do you have trouble keeping your lungs clear?
Mucus. Phlegm. Sputum. No matter what you call it, if it is in your lungs, you want to get it out. Some people who live with chronic obstructive pulmonary disease or COPD only deal with mucus or phlegm when they have a chest cold or exacerbation, while …
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7
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Is anybody looking at NAD+ (nicotinamide adenine dinucleotide) or NR (nicotinamide riboside)
I have seen this study, and other articles reporting on this study. This does look promising, but more research is surely needed. Wondering why this isn't happening? This is an easy, supplement to get - not some expensive pharmaceutical needing a …
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25
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Spirometry: What was your experience?
What is a Spirometry test like? Spirometry (spy-ROM-uh-tree) is a common office test used to assess how well your lungs work by measuring how much air you inhale, how much you exhale and how quickly you exhale. What was your first spirometry test like? …
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8
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Conflicting Diagnosis
that was just a typo. Should be COPD
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0
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11
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Mixed defect? Obstructive and restrictive
Hello, I had my first appointment with a pulmonologist, and he mentioned that the upcoming PFT I have scheduled will show if I have aspects of a restrictive defect concurrent with the obstructive breathing (he saw this in the spirometry that the …
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