0 Votes
4 Answers
How does Ohtuvare work for you? Are you also taking other meds?

I've been taking this newly FDA approved med for 1 month. Also taking Trelegy. Good results. I'm not seeing any of the possible side effects. I no longer feel the Trelegy "wearing off" at the end of the day. I have stopped regular use of my Albuterol …

Author: RichM
0 Votes
3 Answers
how has had a lung transplant at University Hospital in San Antonio?

I am a candidate for a lung transplant looking to chat with people who have gone through this process.

Author: LittleBird
0 Votes
2 Answers
Anyone used an Inogen G4 or G5 outside for 5-10 minutes around freezing weather?

Hi gilly_baba - I use an Inogen G5. I live in Wisconsin so I do live in more extreme weather; snowy and very cold in the winter. I am regularly outside for long periods of time, both in the cold and snow and have had no problems with the POC or with …

Author: gilly_baba
0 Votes
8 Answers
trelegy-I've been using Trelegy inhaler for 6 weeks

I've been using Trelegy inhaler for 6 weeks and in the past 3 weeks have noticed a tremendous amount of mucus. Continual coughing. Should I stop using it?

Author: patty a
0 Votes
5 Answers
cannot Get dressed without completely exhausting myself. The hardest part is putting on my socks. I

cannot Get dressed without completely exhausting myself. The hardest part is putting on my socks. I become breathless and have to go into a recovery mode. Takes about 90 seconds to get under control. That’s only a little thing. I’m unable to rake leaves, …

Author: DowntownJB
Tags:
0 Votes
22 Answers
Anyone here living a long time with emphysema?

Hi, The graph shows life expectancy (for males) beyond 65, dependent on smoking status and COPD stage at 65... I think if you can get to 65 in stage 1 or 2 and quit smoking the outlook is fairly bright (on average / all things being equal)... One thing …

Author: Hopeful
0 Votes
5 Answers
Reducing exacerbations: does daily azythromicyn help? Side effects?

hello, does anyone have experience with daily use of azythromicyn to help reduce exacerbations? Does it help? What about side effects? I’ve read something about hearing loss. I’ve had 3 exacerbations in the last 3 months, each lasting two-three weeks, …

Author: Ilzija
0 Votes
2 Answers
Can anyone shed light on this for me?

I went to pulmonologist and I was diagnosed with COPD 2 years ago. I asked my second pulmonologist about getting involved with some breathing techniques..his answer not at this time. Second time I went to same doctor asked this question again and was …

0 Votes
4 Answers
Cheapest place to buy trelegy?

My dad has improved drastically on the trelegy, but I am paying 100% out of pocket since his insurance wont cover it. He about had a heart attack when he discovered how much it was and no longer wants to use it. Does anyone know of cheaper places to …

Author: SnmOkey
0 Votes
4 Answers
Any one on dupixenr yet? What are your thoughts. Thank you.

Any one on dupixenr yet? What are your thoughts. Thank you.

0 Votes
7 Answers
Morning Headaches... Mild COPD

Hi All, I have mild COPD, FEV1 around 90% and mild hypertension around 135/95. My Oxygen sats average 98% during the day and 94% at night (night time reading might not be a very accurate) I have a good exercise tolerance / non-smoker / healthy BMI. I …

Author: 1fatfanny
0 Votes
11 Answers
Has anyone heard of the POC - O2 Concepts Oxlife Liberty?

I did a little research on it and what I read was contradictary. The manufacturer states it goes up to 1.5 LPM and battery lasts up to 4 hours (without specifying the liter flow it uses to measure) but Bridge to Care states it goes up to 2LPM and will …

Author: JeanO53
0 Votes
4 Answers
Just need some advice

Hi, i hope you are all as well as can be. I'm writing on behalf of my husband, he is 42 years young and has been diagnosed for around 6 years (i think it is) He was stage 3 roughly a year ago when he last saw his specialist, he has had a fair few flare …

Author: Laura91
0 Votes
1 Answers
Check-In: Understanding Medicare Options During Annual Enrollment

The Medicare Annual Enrollment Period (AEP) ends on December 7th. It’s important to check your options and make sure you have the right coverage. If you have COPD, you might use different parts of Medicare. Your doctor visits, medications, and medical …

0 Votes
6 Answers
White frostly mucus

Hi, My spirometry show that i have No copd, so i dont know if this is anything to worry about. I have some sympthoms like sob while exercise, chest pain and now i noticed that my mucus is frostly and white. I googled it and it says it sign of copd. …

Author: Jambo1985
Tags:
0 Votes
5 Answers
Swallowing and breathlessness

My breathlessness typically does not present as severe panting or gasping (unless I am exercising to within an inch of my life!). I typically feel that however deeply I breathe in I cannot get enough air. That's what drove me to the doctor years ago. I …

Author: Wildebeest
0 Votes
4 Answers
Do you have Helpful Books about living with COPD

One of our board members, Dr. MeiLan Han from the University of Michigan, has written a book "Breathing Lessons: A doctors Guide to Lung Health " which we reviewed in our book club several months ago. She also recorded the audio for the audio version of …

Author: Who Me ?
0 Votes
7 Answers
Sleep-Does anyone have sleep decreased on an inhaler?

I just switched from Trelegy to Adavir Diskus (250/50mcg) primarily due to the cost of the two. Trelegy was $47 a month and up to $250 when I hit the gap in August vs $8 a month for the Advair and I won't hit the gap next year unless something drastic …

Author: netmouse
0 Votes
6 Answers
Constant Runny nose

Hi all, Does anyone struggle with a constant runny nose? My mom has severe emphysema and has had a runny nose for the last 10+ years. There is no congestion/stuffy nose, just a constant drip of fluid. She is on room air. Nothing seems to help - she has …

Author: Izbeenz
0 Votes
4 Answers
Does anyone have problems in severe humidity?

Does anyone have problems in 90% humidity?

Author: Weilly
0 Votes
3 Answers
What exactly *is* an exacerbation? (COPD or asthma - I have both)

I have been diagnosed with both asthma and COPD since 2011. Diagnosis confirmed after recent lung function tests in hospital. PEF 77% predicted (reversible to 86%), FEV1 56% (reversible to 67%) and FEV1/FVC 49% (reversible to 54%). Never smoked. No …

Author: Wildebeest
0 Votes
8 Answers
Developing a retractable oxygen reel

I am working on a hand crank retractable oxygen reel. Are there any features people look for when they look or a device like this?

Author: Mik786
0 Votes
6 Answers
I have a few questions. I'm new here.

I've always had asthma but never had trouble with it until a couple years ago. Earlier in the year my dr diagnosed me with stage 2 copd. No literature or anything. Just told me to quit smoking. He put me on Trelegy (only half a lung was working 50% …

Author: Copd1973
0 Votes
2 Answers
Trellegy

has anyone been on Trellegy and it stoped working

0 Votes
1 Answers
I have COPD HIW do I get personal guidance from your research

Please go through our learn more section above. When you have specific questions you can post and we can try to answer. Everyone is unique, as are everyone's COPD journeys.

Author: Brenda Jo
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.