0 Votes
2 Answers
How Can I Reduce or Eliminate My Chect Cavity Pain

Hello. New user here. I have have stage 1 COPD that was stable and very mild (pretty much no symptoms the vast majority of the time) for 18 years. I had an exposure that finally reduced my function somewhat. It's still being called stage 1, but now I …

Author: vandykd3
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0 Votes
9 Answers
Questions to ask Pulmonologist

I have emphysematous changes as per my last CT so I was keen to see if there was in any impact on my lung function. As Dr Mannino suggested previously the results have turned out to be normal. I know it will progress and I am doing everything in my …

Author: RedPower
0 Votes
4 Answers
Need some hope.

Hi Greenie, I'm not a clinician, and only clinicians can crunch your numbers... However, you do seem to have many of the lifestyle factors that are regularly discussed as negatively impacting COPD... Current smoker / obese / sedentary... The clinicians …

Author: greenie1
0 Votes
4 Answers
Home Testing of PEF / FEV1

Is anyone using a Digital Peak Flow Meter for Home Testing of PEF / FEV1 Had a full 45 minute test at my doctor's office last week and my FEV1 has improved from 35 % to 42 % I'm looking at these on Amazon. https://amz.run/9uSg https://amz.run/9uSi

Author: JAH5001
0 Votes
9 Answers
twisting cannula

Why do some cannula twist until it almost strangles me, but another hangs straight all day?  Same brand and type cannula, same connection thingie to the 50' tubing.  My head doesn't spin like the Exorcist.  Can anyone explain this to me???

Author: Joyr
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0 Votes
9 Answers
Ohtuvayre ??? Any feedback would be helpful!

My doc ordered a new vile for my nebulizer called Ohtuvayre. New drug so not too much info on it. My doc told me to take it WITH all my other viles!. I already take Yupelri & Albuterol & Budesonide &Formoterol in one day in my nebulizer called Ohtuvayre. …

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0 Votes
16 Answers
Do you have trouble keeping your lungs clear?

Mucus. Phlegm. Sputum. No matter what you call it, if it is in your lungs, you want to get it out. Some people who live with chronic obstructive pulmonary disease or COPD only deal with mucus or phlegm when they have a chest cold or exacerbation, while …

0 Votes
9 Answers
Any one on dupixenr yet? What are your thoughts. Thank you.

If anyone is like me and unable to do a good job of injecting himself/herself, try to find someone else to inject you. So far, every time H has injected me, I’ve gotten a full dose with NO drips, no leaking of any medication and no bruising. When I …

0 Votes
7 Answers
Is anybody looking at NAD+ (nicotinamide adenine dinucleotide) or NR (nicotinamide riboside)

I have seen this study, and other articles reporting on this study. This does look promising, but more research is surely needed. Wondering why this isn't happening? This is an easy, supplement to get - not some expensive pharmaceutical needing a …

Author: Richard DJ
0 Votes
25 Answers
Spirometry: What was your experience?

What is a Spirometry test like? Spirometry (spy-ROM-uh-tree) is a common office test used to assess how well your lungs work by measuring how much air you inhale, how much you exhale and how quickly you exhale. What was your first spirometry test like? …

Author: Janina K
0 Votes
19 Answers
Ohtuvayre from Verona Pharm

Has anyone been prescribed the new nebulized therapy that is supposed to reduce exacerbations and is steroid free, I think, Ohtuvayre from Verona pharmacy? It has had great test results but my doctors here aren’t familiar with it apparently it’s some …

Author: Sedona7
0 Votes
8 Answers
Conflicting Diagnosis

that was just a typo. Should be COPD

Author: Hopeful
0 Votes
11 Answers
Mixed defect? Obstructive and restrictive

Hello, I had my first appointment with a pulmonologist, and he mentioned that the upcoming PFT I have scheduled will show if I have aspects of a restrictive defect concurrent with the obstructive breathing (he saw this in the spirometry that the …

Author: Sassycat
0 Votes
2 Answers
Pneumonia recovery

I was diagnosed with Emphysema in 2018. My CT scan in November read stable. I am 6 weeks out from a pneumonia diagnosis. I am still struggling to walk or stand for any amount of time without loosing my breath or spastic coughing. Am I expecting to much …

0 Votes
4 Answers
Please help

I’ve been diagnosed with COPD with hypoxia. I’m experiencing SOB, so I measure my oxygen that shows 94. And I was in bed. I also have symptoms like dizziness, brain fog, loss of memory, and weakness all over my body. I measured my Oxygen when I …

0 Votes
14 Answers
Asthma/COPD overlap at 31

Hi Fritz45. I am not sure if you've read my story (kind of long sorry :/) but your situation reminds me a little bit of my story. 115% of predicted DLCO, 91% FEV1, 65% FEV1/FVC. Probably more symptomatic (SOB) than I should be for a FEV1 of 91%. …

Author: Fritz45
0 Votes
9 Answers
Q and A: Did you know that your heart and lungs are “teammates”?

It’s almost Superbowl weekend! While you’re thinking about watching the top football teams on Sunday, you might also want to think about another team…your heart and lungs! Did you know that the heart and lungs are closely connected? They work as a team …

0 Votes
6 Answers
Levels of exhaustion

I am too exhausted to complete basic household chores or leave the house. Does anyone in this forum experience similar level of exhaustion?

Author: MelPat
0 Votes
2 Answers
Kind of new to copd

68 yrs, apparently I have had copd for 25 yrs with minimal symptoms per spirometer test SOB when walking & sinus issues that I use sinus tabs for and nasal rinse.this yr my Dr proscribed puffer salbutamol 100mcg to use not more than 4x a day.even when I …

Author: Sunshine88
0 Votes
4 Answers
What is the new rule about lithium ion batteries and flying with oxygen?

There is a NEW FAA rule about flying with oxygen. Please check your battery and find out what the watt hour rating is. It has to fall below the 160 maximum allowed by FAA or your battery may be banned from the flight. The Inogen One G5 double (16 cell) …

0 Votes
3 Answers
What can I do about chronic sinusitis

Thank you. I am getting my deviated septum repaired and polyps removed and am on new nasal spray azelastine. The spray really helps. Things are better. Also using saline flush. Thanks!

Author: Mrmerkin
0 Votes
5 Answers
Emphysema and Pets

Hi, Diagnosed with mild centilobular emphysema in April 2024. My pulmonologist said hey it’s fine your 67 and it’s mild see you in 3 months. However, it’s not exactly fine. Coughing and wheezing at night and sleeping in most days. I have a dog. Have …

Author: Mrmerkin
0 Votes
6 Answers
Shared Medical Appointments

Mike I am a big fan of group visits. I appreciate everyone has their own style of learning and preferences, but mine is to have others around me that might ask the question I am afraid to ask or too shy to. In the models I have seen, you do get time …

0 Votes
8 Answers
co2 issues

The test to see if you are retaining co2 is and ABG (arterial blood gas test), that is usually taken from your wrist and can be painful. Lack of appetite is not a symptom I am aware of, but shortness of breath OR agitation and/or confusion are. A BIPAP …

Author: Who Me ?
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0 Votes
3 Answers
How do you do purse breathing and what is pulmonary rehab

I'm so happy to have found this site. I was diagnosed with COPD about 6 years ago and was just put on inhalers. I have no idea what stage of COPD I have. I was never told about pulmonary rehab. I was diagnosed with lung cancer about 2 years ago. It was …

Author: Cally k
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.