0 Votes
4 Answers
Death and COPD.

Hi everyone again. I hope I don’t ask too many questions. I just am so thankful for this invaluable site. I read a lot of posts on a Reddit site as well as a few COPD Facebook pages, and sometimes people ask about their parent or someone they know who is …

Author: Hopeful
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0 Votes
6 Answers
Any one on dupixenr yet? What are your thoughts. Thank you.

Any one on dupixenr yet? What are your thoughts. Thank you.

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3 Answers
What is the lung function abbreviation on PFT?

Hi Hopeful. When people talk about their lung function they're talking about FEV1. As far as the other numbers you mentioned--I have no idea!!!! When they say they have--say--60% lung function(me) --they are talking about FEV1. I don't pay a lot of …

Author: Hopeful
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0 Votes
6 Answers
Burping and Respiratory Issues

Hi, I am under investigation for respiratory issues which I have had for around two year or may be even more but it is first now when it impacts daily life that testing to find the reason began. one wierd thing is that breathingdifficulty is associated …

Author: sixty six
0 Votes
2 Answers
O2 delivery

The oxygen setting is at 2L on the machine, how do we know how much is being delivered to the canula?

Author: lazy t
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0 Votes
5 Answers
Are You Ready For Some Holiday Fun?

Happy Holidays! It's time for some fun! Is anyone up for some Christmas riddles?? Why was the Christmas tree so bad at knitting? How much did Santa pay for his sleigh? What did Santa need when he sprained his ankle? What kind of bugs don’t like …

0 Votes
12 Answers
When to go on regular prednisone?

I see my pulmo next m onth and I'm thinking of pushing for daily prednisone. I know that when SOB is persistent, the dosepack really helps. Problem is I seem to be on a 2-3 week cycle of taking them. What mg would be best to start with? Any comments. ed

Author: edpe77
0 Votes
2 Answers
Anyone on Dupiczet and what are your thoughts?

Hell all- I was wondering if anyone is on dupiczet for COPD. Whart are you thoughts. Thank you

0 Votes
2 Answers
Raising oxygen levels

My roommate has had COPD for The last 5 years. He has been on level 8 on his machine. His levels run 93 to 96. Today is levels went up to 98/99 when sitting and would drop to 80 to 83 when he would stand up or take a couple steps. Pulmonologist said to …

Author: Teri234
0 Votes
16 Answers
Ohtuvayre from Verona Pharm

Has anyone been prescribed the new nebulized therapy that is supposed to reduce exacerbations and is steroid free, I think, Ohtuvayre from Verona pharmacy? It has had great test results but my doctors here aren’t familiar with it apparently it’s some …

Author: Sedona7
0 Votes
7 Answers
Trelegy

Anyone notice a change in their voice on this medication. It works well for me. But, i voice is getting worse. I guess it's time to go to ENT doctor.

Author: perkyH
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0 Votes
12 Answers
Any one tried Trelegy 200 yet?

Just saw my doctor today. Had been on 100 Trelegy for awhile. He gave me samples of Trelegy 200. Any one tried it yet and what were the result. Thank you.

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0 Votes
7 Answers
COPD-Dupixent for their COPD

Dang--the internet ate my response. I just bought a new Frio duo pack to keep my Dupixent pen at or above 77 degrees when I am traveling. It is an evaporative technology that cools slightly as it evaporates and doesn't make the medication COLD but keeps …

Author: Kda
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0 Votes
2 Answers
Mom got diagnosed with emphysema on CT. A few questions.

Hello everyone, I am new to this place here but I have already read a lot. my mom had a CT scan done and they found moderate emphysemous changes. she does not have symptoms and has FEV of 93%. The doctor said her lung function is very good for her age …

Author: RinchenBo1
0 Votes
7 Answers
Any other alternative medicine people signed up here?

Alternative Medicine is not just Homeopathy and Herbs. What about Breath Work , Massage, Reflexology, Acupressure, Yoga. Meditation and the like? We are hearing more and more about the mind body connection? Research shows memories are not just stored in …

Author: cac
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0 Votes
6 Answers
​Worried about my disease diagnosis:

I am just 22 years old and have Asthma from childhood. For the past 6 years my asthma has been in control. But in May 2024, I had a very severe attack that almost had me hospitalized. I was diagnosed with ABPA. My condition got worse - frequent and long …

Author: Jasnee
0 Votes
7 Answers
Not typical - Heartbroken - Lack of answers

Welcome T Town.......Sooooo......If you've been following for a few months then I'll guess you've already read the info in the tabs at the top of the page--if not then read--It's helpful. I'm just a patient like yourself so I can't answer your questions …

Author: T Town
0 Votes
7 Answers
My Brother Has Constant mucus in throat

I know this isn’t about me and I don’t have any test results so my apologies right off the bat. But I just want to get some advice. My brother is 36M and he smoked weed for 12 years. He quit about 2 1/2 years ago but he told me he has mucus in his throat …

Author: MTSpecial
0 Votes
5 Answers
Is anybody looking at NAD+ (nicotinamide adenine dinucleotide) or NR (nicotinamide riboside)

I have seen this study, and other articles reporting on this study. This does look promising, but more research is surely needed. Wondering why this isn't happening? This is an easy, supplement to get - not some expensive pharmaceutical needing a …

Author: Richard DJ
0 Votes
11 Answers
worse after nebulizer treatments

I do brovana and budnesonide in nebs twice a day too and I do seem shaky after budesonide.

Author: jbiggs
0 Votes
23 Answers
How Long Can your Oxygen Tubing Safely Be?

There was a study just released. It looked at oxygen flows from cylinders and concentrators at 1 lpm, 3 lpm and 5 lpm over various lengths. Before I spill the beans on the results, I would like to hear what others are using, think is safe, …

0 Votes
2 Answers
What can I do about chronic sinusitis

I saw your list of meds on social. Is the ipratropium a nasal spray or for your lungs? Are you using Benadryl, Ipratropium, Flonase, Affrin, Mucinex everyday? I assume the antibiotic was prescribed by your physician. I'm not a doctor but I don't think …

Author: Mrmerkin
0 Votes
2 Answers
Can I have an opinion?

Hello, My name is Mat (42). Writing for a first time at this forum. I would like to get an opinion, especially from Dr. David, if there is any chance? Sorry for my english, I am from Europe (Poland). There is my case. I have been smoking for about 25 …

Author: Mat82
0 Votes
1 Answers
Stem Cell Therapy

Has anyone here tried stem cell therapy? I tried PRP about 3 years ago. It didn't help. I'm considering getting it done in Tijuana, MX. They use MSC with exosomes. However, I've read such mixed reviews and just wondered if anyone with COPD has had any …

Author: Stephsd
0 Votes
2 Answers
Check-in: Looking Back at 2024

That's the summary of a good year Kristen. Thanks to you and everybody at the COPD Foundation for all you folks do to help us COPD patients ---Dave S (alias das23 )

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