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9
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Injections-Dupixent or Tezspire
It’s fascinating to see different folks’ responses to various medicines. I guess it’s like aspirin, Tylenol, ibuprofen and Alleve or even like allergy treatments People find different ones helpful vs not helpful. I normally take ibuprofen only while my H …
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Has anyone tried the Carda Health at home rehab ?
I see they are rated well online, but I have grown leery of ratings. Can anyone tell me how they liked 12-week program? Seems Medicare covers it. not sure what i the cost is. They loan you monitoring equipment and a I pad for the program.
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13
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Support COPD Foundation by shopping!
Smile.Amazon.Com is a new feature of Amazon that makes a charitable contribution to the charity of your choice at no cost to you. The COPD Foundation is listed as an eligible charity. I have made them my charity of choice. Prices are exactly the same …
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4
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Can someone please explain?
I have mild emphysema, just diagnosed at age 53, I'm very active, running regularly X3 times a week, no cough or breathing issues just a small crackling sound in left lung when lying down at night. I stopped smoking 12 years ago and my doctor assures me …
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1
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Quit smoking after diagnosis
I was diagnosed this July with trace of Paraseptal emphysema at the tops of both lungs PFT was normal. FEV1 96%. FEV1/FVC .75. DLCO 73 I’m 57. My question is now that I have been off cigarettes I’ve been told I’m not doing any further damage in the ways …
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6
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what brand of poc is best?
what brand of poc is best, iam looking at inogen 4 and 5
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1
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COPD awareness month is just around the corner! Are you ready?
Every November, people from around the world work together to create awareness surrounding COPD, alpha-1 antitrypsin deficiency, and chronic lung disease. We share information and education about the symptoms, diagnosis, and treatment of these conditions …
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2
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Can anyone recommend a reputable, trustworthy medical supply company for me to purchase a POC?
I would like to talk with someone who knows about the needs of a person with COPD and the person doesn't "hard sell" their POC's. I would like to purchase one that Medicare doesn't pay for that has higher settings. My current pulmonologist has not been …
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5
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Check in: Help Protect Yourself Against RSV, Shingles, and Pertussis by Getting Your Vaccine.
Earlier this month my colleague and friend Christina, wrote an interesting check-in about the flu and pneumonia vaccines . Did you know that there are other vaccinations that are important for adults, especially those with chronic lung disease? RSV …
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8
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co2 issues
The test to see if you are retaining co2 is and ABG (arterial blood gas test), that is usually taken from your wrist and can be painful. Lack of appetite is not a symptom I am aware of, but shortness of breath OR agitation and/or confusion are. A BIPAP …
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6
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Should I tell my family
I've recently been diagnosed with very mild COPD, very active and fit, no cough or breathing issues. Should I tell my wife and kids, I feel like they don't need this and all the worry that goes with it. If I can keep fit and keep this mild do they need …
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5
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incipient paraseptal emphysema
Hello, I'm Slovak, so I apologize for my English, google translator helped me. I am 28 years old and a month ago I was diagnosed with paramediastinal paraseptal emphysema on HRCT. I also went to a pulmonologist and she also did a spirometry fev1 100% …
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4
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SOME REASSURANCE PLEASE.!!!
I've recently been diagnosed with COPD, I'm 53yrs old, stopped smoking 12 years ago. I had a crackle in my lung and got a CT scan which showed mild COPD. I then got a spirometry test which the nurse told me, on it's own it would have been "pre" or "at …
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16
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Is it normal to be informed you've got COPD by letter
I, for one, am glad the medical system is o longer treating us like mushrooms (kept in the dark and fed sh--). With "MyChart" I get test results before the doctor even sees them. Sometimes I choose to panic. Sometimes I choose to wait and see what the …
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9
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If I need 4L/min on a flight but can only get 2L/min from approved devices, what are the risks?
To add to Bill's excellent explanation of the settings on the Inogen G5 - here's a link to the Running On Air website's complete list of all current POC's and the actual amount of oxygen each puts out at their settings. https://runningonair.net/pocs …
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7
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Can anyone recommend a travel nebulizer suitable for 7% hypertonic saline?
We like the speed of an ultrasonic nebulizer, and bought the Flyp, only to discover it can’t be used with hypertonic saline. Are there other options?
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15
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End stage COPD and nighttime confusion?
Cheather. I just want you to know that I myself have dealt with this problem. I'm not sure when it started or when it slowed down. I the last year or so, I have had very wierd dreams with people in my family who have passed away and in places that I may …
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Ohtuvayre (ensifentrine)
We have been getting questions regarding the new medication Ohtuvayre. While the COPD Foundation does not endorse any medications we feel it benefits the community to know where to find factual information they need regarding their health choices. Please …
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1
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Does Ensifentrine works on the emphysema component of COPD?
Hi. I am new to the group and I have severe COPD and was diagnosed approximately 10 years ago. Lately, nothing seems to help my breathing on exertion. I am waiting for my doctor to get approval for Ensifentrine, hoping that this will help. I am having a …
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2
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Can you take Atrovent and Symbicort at the same time
Can you take these drugs together
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2
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Anyone here been diagnosed with copd and raynauds
auto immune symptoms fatigue muscle weakness joint inflamation swollen lymph nodes
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3
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COPD and Raynaud’s?
Just curious, anybody else out there have both COPD and Raynaud’s? Wondering if there’s a link. My Raynaud’s appeared around the same time as my COPD, and its getting colder now so it’s more on my mind. :)
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6
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Mullein Tea for COPD
Hi. Trying to recover from bad flare and very high CO2 (needed BiPAP in hospital). COPD for many years. Has anyone had favorable results from Mullein tea?
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0
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11
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My oximeter says 96% BUT...
I was putting up some Christmas lights and started to get SOB. I sat down and took a reading on my oximeter. It said my SpO2 was 96% but I was gasping for air. Until I can see my pulmonologist on this does anyone know what could be happening to me or …
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anybody out there using zephyr valves?
I'm scheduled to get a few installed and would like to hear from someone who has experienced such.
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