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how has had a lung transplant at University Hospital in San Antonio?
I am a candidate for a lung transplant looking to chat with people who have gone through this process.
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Anyone used an Inogen G4 or G5 outside for 5-10 minutes around freezing weather?
Hi gilly_baba - I use an Inogen G5. I live in Wisconsin so I do live in more extreme weather; snowy and very cold in the winter. I am regularly outside for long periods of time, both in the cold and snow and have had no problems with the POC or with …
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Can anyone shed light on this for me?
I went to pulmonologist and I was diagnosed with COPD 2 years ago. I asked my second pulmonologist about getting involved with some breathing techniques..his answer not at this time. Second time I went to same doctor asked this question again and was …
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Morning Headaches... Mild COPD
Hi All, I have mild COPD, FEV1 around 90% and mild hypertension around 135/95. My Oxygen sats average 98% during the day and 94% at night (night time reading might not be a very accurate) I have a good exercise tolerance / non-smoker / healthy BMI. I …
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Has anyone heard of the POC - O2 Concepts Oxlife Liberty?
I did a little research on it and what I read was contradictary. The manufacturer states it goes up to 1.5 LPM and battery lasts up to 4 hours (without specifying the liter flow it uses to measure) but Bridge to Care states it goes up to 2LPM and will …
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Just need some advice
Hi, i hope you are all as well as can be. I'm writing on behalf of my husband, he is 42 years young and has been diagnosed for around 6 years (i think it is) He was stage 3 roughly a year ago when he last saw his specialist, he has had a fair few flare …
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White frostly mucus
Hi, My spirometry show that i have No copd, so i dont know if this is anything to worry about. I have some sympthoms like sob while exercise, chest pain and now i noticed that my mucus is frostly and white. I googled it and it says it sign of copd. …
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Do you have Helpful Books about living with COPD
One of our board members, Dr. MeiLan Han from the University of Michigan, has written a book "Breathing Lessons: A doctors Guide to Lung Health " which we reviewed in our book club several months ago. She also recorded the audio for the audio version of …
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Sleep-Does anyone have sleep decreased on an inhaler?
I just switched from Trelegy to Adavir Diskus (250/50mcg) primarily due to the cost of the two. Trelegy was $47 a month and up to $250 when I hit the gap in August vs $8 a month for the Advair and I won't hit the gap next year unless something drastic …
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Constant Runny nose
Hi all, Does anyone struggle with a constant runny nose? My mom has severe emphysema and has had a runny nose for the last 10+ years. There is no congestion/stuffy nose, just a constant drip of fluid. She is on room air. Nothing seems to help - she has …
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Does anyone have problems in severe humidity?
Does anyone have problems in 90% humidity?
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What exactly *is* an exacerbation? (COPD or asthma - I have both)
I have been diagnosed with both asthma and COPD since 2011. Diagnosis confirmed after recent lung function tests in hospital. PEF 77% predicted (reversible to 86%), FEV1 56% (reversible to 67%) and FEV1/FVC 49% (reversible to 54%). Never smoked. No …
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I have a few questions. I'm new here.
I've always had asthma but never had trouble with it until a couple years ago. Earlier in the year my dr diagnosed me with stage 2 copd. No literature or anything. Just told me to quit smoking. He put me on Trelegy (only half a lung was working 50% …
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Trellegy
has anyone been on Trellegy and it stoped working
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I have COPD HIW do I get personal guidance from your research
Please go through our learn more section above. When you have specific questions you can post and we can try to answer. Everyone is unique, as are everyone's COPD journeys.
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Trelegy-I'm new here and just read a post that is 2yrs old
Hello, I'm new here and just read a post that is 2yrs old from lizimandu57 about Trelegy. I'm not sure how to contact her but she said that she got her Trelegy from Canada. I would like to know the name of the pharmacy. How do I contact lizimandu57? …
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Results adivce
Hi everyone I’m 29 male was having investigations for chronic bronchitis and was told I had it by one pulmonologist now I’ve had my second CT and spiro and these were my results I then got discharged and since then I have had blood in my mucus and many …
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Is there lung/chest pain associated with emphysema
I have pain from time to time in the chest area , but if it is related to my emphysema , dont know , we have no pain receptors in the lungs, but your muscles may hurt because of the ekstra strain on breathing.
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My nasal canula keeps twisting up under my chin. Is there any way to stop this from happening?
My nasal cannula keeps twisting up under my chin. Is there any way to stop this from happening? It is driving me insane. Suggestions?
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Spiriva and dementia
I recently read that there is a question concerning Anticholinergic drugs (Spiriva in my case) and dementia. I've been on Spiriva 3 years. I'm 73 and have experienced the occasional memory issues - what's that word/what did I come in here to get - common …
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Have you had 2 or more respiratory infections in the past 12 months? Could it be bronchiectasis?
Bronchiectasis can be tricky and often goes undiagnosed or misdiagnosed for quite some time. It’s important to understand how COPD can contribute to bronchiectasis and why catching it early can make a big difference. Let’s take a closer look together! Do …
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32 Male here smoked for 10 years diagnosed with COPD. I want to see if I can get any advice.
Hi studder333 I'm sorry to see that you're having a lot of symptoms. Are you seeing a pulmonologist (lung doctor)? If not, it may be a good idea, given your symptoms. We have a few virtual groups that you may be interested in: Our monthly support …
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Morning breathing problems/obstruction after bad nights sleep
Hi everyone, I 29M have obstructive breathing without reversibility (which looks like small airways COPD, but not yet officially diagnosed with COPD or asthma). Recently, I have been having alot of chest discomfort and obstruction in the lungs (with a …
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I am new to this Web site
One of the known interventions in COPD is vaccinations. We recommend that patients be vaccinated to influenza ( annually), Covid, pneumonia, pertussis, RSV, Shingles ( in addition to the usual childhood vaccinations). Are vaccinations 100% effective? No …
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Diagnosis after pneumonia?
I'm just a patient but I think it can go either way. COPD can contribute to getting pneumonia or lung damage from pneumonia can lead to COPD. That's not an absolute because every individual can be different
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