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Stem Cell Therapy
Has anyone here tried stem cell therapy? I tried PRP about 3 years ago. It didn't help. I'm considering getting it done in Tijuana, MX. They use MSC with exosomes. However, I've read such mixed reviews and just wondered if anyone with COPD has had any …
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2
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Check-in: Looking Back at 2024
That's the summary of a good year Kristen. Thanks to you and everybody at the COPD Foundation for all you folks do to help us COPD patients ---Dave S (alias das23 )
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5
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can you improve your lung function?
Yes, if you quit smoking and stay away from pollution. If you are asking about emphysema, unfortunately alveoli cannot repair themselves. According to Check 4 Cancer a UK site "When you quit smoking, dormant cells in the lungs will start to replace the …
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Any recommendations for dryness and bleeding in nose
Fortunately I'm not on oxygen. I didn't realize anyone used dry oxygen except for portable. You can get a humidifier for portable also. Try a saline solution for your nose and also get a nasal gel for dryness. Netti Pot is good too but you must use …
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9
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Stress, exacerbation and high CO2
Hi all, My 84 year old father has COPD and CHF. He ended up in the ER this morning because he was extremely short of breath. They were able to get his breathing under control, and also found his CO2 levels were elevated, which they also took care of. …
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Stiolto Respimat
Has anyone else had problems using Stiolto Respimat. Problems start about 3 days after starting this inhaler. Around 5pm i start feeling better.
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3
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Check-In: Understanding Medicare Options During Annual Enrollment
Choose carefully. Please Know --- You normally only have one chance to choose a supplement w/o answering health questions after you enroll in Medicare. If you want to change, and you have a preexisting condition such as COPD, an insurance company does …
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Cheapest place to buy trelegy?
Trelegy is an approved drug for Medicare and nearly all drug plans cover it. WTS, I assume your father is not eligible for Medicare. I think if you go to the site David Mannino MD linked, I think you will find help. You could also go to the …
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9
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Cooking/living while on oxygen
Rahly, there's no reason people with COPD can't cook. I've had COPD for over 25 years, and have been using 02 since 2000 and cooked regular meals for my family all the time. You do have to be careful with the hose and I run it down my back to keep it out …
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7
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Does the winter cool wind effect your breathing more that summer? Any suggestions
What seems to effect you more so breathing, the cool windy air, or summer. Any suggestion? Feel like probably stay in out of gold but I want to be active
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18
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Quite worried about disease progression
Hi, firstly I'm not a clinician but the graph below indicates those who give up smoking on average loose FEV1 at half the rate of those who continue to smoke (perhaps somewhere near normal) although nothing is guaranteed... So you've already bought …
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Developing a retractable oxygen reel
I am working on a hand crank retractable oxygen reel. Are there any features people look for when they look or a device like this?
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6
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Swallowing and breathlessness
My breathlessness typically does not present as severe panting or gasping (unless I am exercising to within an inch of my life!). I typically feel that however deeply I breathe in I cannot get enough air. That's what drove me to the doctor years ago. I …
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5
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Frozen lung feeling - new symptom
Hi all (Back story -I have Bronchieastatis and Emphesema.) Since having COVID four months ago I keep developing a freezing cold lung on one side...like a menthol feeling. It comes and goes and when it comes I go GP he gives me antibiotics - this has …
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6
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Reducing exacerbations: does daily azythromicyn help? Side effects?
hello, does anyone have experience with daily use of azythromicyn to help reduce exacerbations? Does it help? What about side effects? I’ve read something about hearing loss. I’ve had 3 exacerbations in the last 3 months, each lasting two-three weeks, …
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will the the Inogen poc work at 30 degree temps?
will the Inogen poc work at 30 degree temps?
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4
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Does air pollution exacerbate COPD ?
We consulted several pulmonologists for my husband's mild asthma over the last one year. No one mentioned COPD. We're currently overseas in an area of heavy air pollution now. His reaction of worsening asthma/wheezing here is leading diagnosis of COPD …
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How does Ohtuvare work for you? Are you also taking other meds?
I've been taking this newly FDA approved med for 1 month. Also taking Trelegy. Good results. I'm not seeing any of the possible side effects. I no longer feel the Trelegy "wearing off" at the end of the day. I have stopped regular use of my Albuterol …
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6
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Standing still vs walking
Does anyone else seem to have more difficulty standing still than walking ?
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Recommendations for no ozone air purifiers please
Hi ! I know this question has been asked in the past. I have a friend who loves and sells Vollara . It is a good machine but costs around $800. What do you recommend? Thanks
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24
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Anyone here living a long time with emphysema?
Hi, The graph shows life expectancy (for males) beyond 65, dependent on smoking status and COPD stage at 65... I think if you can get to 65 in stage 1 or 2 and quit smoking the outlook is fairly bright (on average / all things being equal)... One thing …
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3
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What are you doing for too much phlegm?
the following email came to me today, Lung inflammation in COPD is reduced with a form of vitamin B3 https://copdnewstoday.com/news/form-vitamin-b3-lowers-copd-lung-inflammation-study/ They studied nicotinamide riboside. Read the article. I wrote to …
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6
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Going to events
Emphysematous changes and early background COPD on my CT. Lung function testing in a couple of weeks. I am doing everything I can to slow progression - daily exercise, good eating, vaccinations etc I play 8 ball pool and attend our National event …
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Lung Ablation
My husband recently found a video about a Taiwanese hospital that performs lung ablation for COPD patients. The Dr. stated that he's had success with the procedure. Upon checking into it, it seems it was started by a team in a Sichuan hospital in China. …
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10
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trelegy-I've been using Trelegy inhaler for 6 weeks
I've been using Trelegy inhaler for 6 weeks and in the past 3 weeks have noticed a tremendous amount of mucus. Continual coughing. Should I stop using it?
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