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19
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Quite worried about disease progression
Hi, firstly I'm not a clinician but the graph below indicates those who give up smoking on average loose FEV1 at half the rate of those who continue to smoke (perhaps somewhere near normal) although nothing is guaranteed... So you've already bought …
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8
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Terminology on CT Report
To me- that means there is some evidence of emphysema ( thinned areas of lung or holes in the lung) on imaging. Most people with this alone have fairly normal lung function- but at increased risk for developing COPD in the future ( particularly if they …
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17
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I HAVE JUST BEEN DIAGNOSED WITH COPD…NOW WHAT??
This is rather long, but it is designed for those folks who have recently been diagnosed with COPD. It has some valuable information for everyone... I HAVE JUST BEEN DIAGNOSED WITH COPD…NOW WHAT?? I am not a physician. Not even close. What I am is a …
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6
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Its probably COPD - please help me to understand
Does a lack of reversibility strongly point towards COPD diagnosis? It just means that it is probably not asthma but it does not mean COPD - If it is COPD, can I still work in a lab with chemicals (i.e. is the risk worth it, should I quit/switch …
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3
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Financial Assistance
My 71 year old sister-in-law is now oxygen dependent. She lost her job as a result. Her husband suffers with his own health issues and recently lost his job too. We are helping them get governmental assistance with food and Medicaid. They cannot survive …
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27
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Retractable Oxygen Tubing: Do you use this?
I have had COPD for nearly 20 years and have fought that coiled medical tubing on the floor each and every day of those 20 years. My mother tripped over hers numerous times finally breaking both of her hips in two separate incidents. I have stumbled over …
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3
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Stage four bull cancer emphysema
so I have read my doctors notes from Monday this morning remembering I have to go have blood work done on Monday for the sales and ELECTRIC cardiogram on Tuesday so it said in his nerves that I had stage four bullies emphysema. So what does this mean for …
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17
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End stage COPD and nighttime confusion?
Cheather. I just want you to know that I myself have dealt with this problem. I'm not sure when it started or when it slowed down. I the last year or so, I have had very wierd dreams with people in my family who have passed away and in places that I may …
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26
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How Long Can your Oxygen Tubing Safely Be?
There was a study just released. It looked at oxygen flows from cylinders and concentrators at 1 lpm, 3 lpm and 5 lpm over various lengths. Before I spill the beans on the results, I would like to hear what others are using, think is safe, …
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3
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OnCOPD
I agree with the pulmnary Rehabilitation suggestion. Have you had pulmonary function testing or CT imaging post operatively?
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1
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N100
I have just discovered these carbon filter reusable masks. I've been using n 95s until now but I can smell diesel fumes and strong perfumes and aftershaves through it. Back in the city and am finding it difficult to breath. My asthma is at crazy levels …
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2
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Has anyone tried NO medication for COPD?
I've been on Breo, now max dose of Trelegy for years. Have severe COPD (emphysema), and just wonder what would happen if I stopped.
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7
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Any recommendations for anxiety and depression meds?
Hi everyone. I'm new here. I'm overwhelmed. My COPD is progressing. I don't have a support system of family or friends that understands. I can't work but can't get approved for disability yet. The stress of everything is getting to be almost too much. …
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6
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Anyone have problems with desaturating during sleep
Hi, Just to share my experience, my FEV1 is approx 90% and my gas exchange is moderately compromised. According to my ‘fit bit’ (night time) and a good pulse ox (day time) and having readings going back over a couple of years, my day time ox is around …
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2
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Has Anyone Used Aspirin To Slow Progression or Reduce Symptoms?
Aspirin Use and Respiratory Morbidity in COPD: A Propensity Score-Matched Analysis in Subpopulations and Intermediate Outcome Measures in COPD Study - PMC A Longitudinal Cohort Study of Aspirin Use and Progression of Emphysema-like Lung Characteristics …
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3
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ADD med helping breathing
Last month I began a new med to treat my ADD. I’ve had issues with focusing like reading, comprehension etc since I was a kid. Incidentally, since taking this medication called Vyvanse, I’ve noticed my breathing has gotten about 90 percent clearer. I …
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10
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Never had any phelm with so many colors
I started out week ago with sore throat, headache and cough. Some wheezing. Went to Dr he thought was sinus infection. Prescribed musnix, Prednisone, and cifdinir.Over the next couple day I was coughing up yellow, pink, dark green and dirt brown phlegm, …
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11
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Stem Cell Research Finally Cures Mild Emphysema in Humans
Study Details | Treatment of Chronic Obstructive Pulmonary Disease (COPD) With Diffusion Capacity Defect by REGEND001 Cell Therapy | ClinicalTrials.gov The Chinese are really pushing hard on this, there population (and the world) are really suffering …
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3
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Best air purifier for smokers, Expert recommendations to choose
I am currently supporting a loved one who has COPD and is still struggling with long term smoking addiction. While quitting remains a personal and ongoing challenge for him, I am trying to do what I can to reduce exposure to smoke and pollutants inside …
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12
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Regrets
I’m sorry to read how difficult this is for you. There are a lot of positive things I could say, but I’m not sure that would be very helpful for you right now. My suggestion is that you find someone to talk with, a good mental health therapist just to …
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3
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Supporting a Loved One Who Smokes with COPD
Hi everyone, I am new to this community and here to learn. Someone close to me has COPD but is still smoking due to long term addiction. I am trying to support him the best I can but it is hard when he struggles to quit. If anyone here has been in a …
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5
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What is the new rule about lithium ion batteries and flying with oxygen?
There is a NEW FAA rule about flying with oxygen. Please check your battery and find out what the watt hour rating is. It has to fall below the 160 maximum allowed by FAA or your battery may be banned from the flight. The Inogen One G5 double (16 cell) …
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7
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Sorry for all my negative venting . Here’s something positive 💕
with all my Negative post here’s one good thing that has happened I’ve been caring for a sick puppy around the clock who wouldn’t eat and he’s made a remarkable turnaround and his strong and eager to eat, he kicks his little feet in happiness I’m …
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6
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Is anybody using either azithormycin or roflumilast for phlegm control ?
Hi Richard, while i am not a clinician you can check with your doctor if cutting the cheaper 500mcg pills of Rofluminast in half with a pill cutter would work for you. I don't know if they are time released or not. Pill cutters cost about $6 online or …
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2
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Using Acupuncture
Has anyone had Acupuncture and found it to help you with breathing or other things? The reason I ask is because I have been having a problem with irregular heartbeats and a friend asked me to try seeing a Acupunctureist. I have been twice now and the …
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