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0
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5
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Aspiration Recovery-Any one know?
My husband had is first aspiration and hospital stay.I hear some say it takes up to 3 months to fully recover. Some are saying you do fully recover and others say you don't. Any one know?
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0
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25
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My Zephyr Valve journey
Today I had 4 Zephyr valves inserted into my left lung. Since finding info on patients who have gone through it has been difficult for me, I decided to share what I can in hopes it might help someone else looking for info or trying to make a decision. …
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0
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34
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Anyone hopeful about possible regenerative therapies in near future?
Its really interesting to get Dr David Mannino's Professional opinion on these trials. David Mannino, MD (Chief Medical Officer, COPD Foundation ) Firstly I agree, avoid "clinics" that offer stem cell based treatments that are unproven, there are many out there who are happy to take your money but …
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0
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4
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Lung Volume Reduction Surgery
I am wondering if any of you have had LVRS and what you cam tell me about it. Thanks in advance for your input.
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7
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Oxygen needs
I have moderate COPD and secondary mild Pulmonary Hypertension. My pulmonary function tests this past October showed some improvement. tResults from a 6 minute walk showed that my oxygen levels were above 88 during exercise and supplemental o2 for …
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0
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2
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RV/TLC nomral but elevated RV, FRCpl... is this concerning?
I did use a good amount of effort on the test. After visit report says no evidence of obstruction or restriction. I asked follow up about some of the numbers but didnt get much further clarification from the pulmonologist. SPIROMETRY : FVC 115% ; FEV1 …
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0
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8
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How many people were told about portable mesh nebulizers by their Doctor?
In a search for a nebulizer machine that worked on both plug in and or batteries ( which I could not find) I came across a "mesh nebulizer" on Amazon for 49 dollars US and purchased it. Used it and I am so mad I had to go threw so many gut wrenching …
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0
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13
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A different kind of quit smoking question...
Not too long after I quit I joined a quit smoking site that maintains stats as a motivator. This is from my profile page with my current stats. Based on averages: 25,925 unsmoked, better yet $10,629 dollars saved and best of all I am breathing again
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0
Votes
6
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Why don't people want to quit smoking?
Hi DannyB - I really wish it was that simple. I'm speaking as a former smoker, the addiction to smoking cigarettes is not mostly psychological. There is also a physical addiction to the substances in cigarettes. I finally quit smoking 18 years ago …
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0
Votes
4
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When to up oxygen level?
I'm curious. When do people get on oxygen? Is it only when a pulse oximeter shows low oxygen levels? I sometimes have shortness of breath, especially while healing after relapsing. (Which I'm going through now. Not smoking tho!), but my at-home pulse …
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2
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Is it true I just lost 10 years off my life?
I was diagnosed with afib and coronary artery disease when I was 34 years old and I now have 5 stents since then.. Now just last week I was brought to the emergency room where I was diagnosed with COPD (emphysema) ..
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0
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2
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Are you part of Medicare’s Extra Help or Low-Income Subsidy (LIS) program?
If you are part of Medicare’s Extra Help or Low-Income Subsidy (LIS) program, how does that impact what you pay for your prescriptions?
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0
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2
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Ohtuvayre residue in Neb cup.
I use two different Nebulizer cups for Ohtuvayre. One, the Aeroeclipse XL and the other, the Parí LC Sprint. I don’t notice anything unusual with the Aero, but the Sprint ends up with a gelatinous residue on the inside and outside of the insert. Is this …
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0
Votes
3
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Check-In: Commonly Asked Questions About Pulmonary Rehab
Pulmonary rehabilitation (PR) is a program designed to help people living with COPD or other chronic lung conditions feel better and breathe easier. Today, we are answering some questions to help you decide if PR is right for you. What happens in a …
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0
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Mesh Neb condensation
Is there a mesh Nebulizer that produces a good aerosol that doesn’t condense half the volume in he mouthpiece (and not slow.)
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0
Votes
11
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How do you stay healthy and active while living with COPD?
People with COPD are asking: how do you stay healthy and active while living with COPD? We asked members from our COPD community to share your own personal tips. Check out what they came up with! Join us in the conversation by sharing your own tips for …
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Votes
1
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How many of us remember these horrible ads?
Many of us got to where we are today from smoking cigarettes, cigars, and pipes. Young people today (especially medical professionals) simply don't understand how, given the potential for tobacco-related illnesses, we started smoking to begin with. What …
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0
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8
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Check-in: Who’s on your health care team?
When you have COPD, different doctors can provide important information to help you take care of your lung health. Here are some of the care providers you may see: Primary care doctor: Your primary care doctor is often the first person you talk to …
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0
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3
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Have You Heard About the IMPACT Lung Health Event?
Last week, members and friends of the COPD Foundation and Bronchiectasis and NTM Association patient, caregiver, and health care communities convened in Washington, D.C. for a day of lung health advocacy on Capitol Hill. Together, 54 advocates from 28 …
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0
Votes
9
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Ohtuvayre use
Problem: I was having problems with foaming after “vigorous shaking”. , and the solids in the ball at the top. Solution: in all cases, “twirl” ampule vigorously between palms. No need to shake! Solids will go into suspension without foaming! If …
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0
Votes
2
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Are there ways to clean your home without strong chemicals?
I was recently asked to do participate in an interview about how cleaning supplies at home can have an impact on people living with breathing issues. If you are like me, you grew up in a house where the smell of Pine-sol and bleach meant mom had been …
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0
Votes
1
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Best Adjustable Bed for Home Use 2026 | Expert Advise
I researched about the best adjustable bed for the past few days because I’m planning to upgrade my current setup for better comfort and support. I read reviews on the New York Times, Consumer Reports, and Popular Mechanics, and they are marking these …
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0
Votes
12
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Anyone using Trelegy and have a side effect related to hearing?
Day 1 , stopped my Trelegy inhaler . Ringing, and swooshing sound has stopped incredibly. I woke up this morning day 2 , and this bad ringing in ears , has lessened quite a bit. I am curious if I have finally resolved this Trelegy inhaler mystery . I …
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0
Votes
2
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PFT results improved
Since switching from Trelegy 100 to 200 last June, I’ve gone from at least two exacerbations per year to none so far, and it’s been 10 mos now. My last PFT results in Jan were greatly improved and my exercise tolerance is so much better. No …
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0
Votes
4
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Had a endoscopic moved up to today, why do they have to dilate it 2 times?
I was so thankful when they moved up my endoscopic from July 8 to today. Everything went well as far as the procedure he did have to dilate my esophagus. He said that I had some twisting in there and he dilated it from a 24 to 54. But then I have to go …
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