0 Votes
7 Answers
How many people were told about portable mesh nebulizers by their Doctor?

In a search for a nebulizer machine that worked on both plug in and or batteries ( which I could not find) I came across a "mesh nebulizer" on Amazon for 49 dollars US and purchased it. Used it and I am so mad I had to go threw so many gut wrenching …

Author: BKD73
0 Votes
1 Answers
PBM Therapy (photobiomodulation) as a possible add on therapy in the treatment of COPD?

I hope that David Mannino, MD (Chief Medical Officer, COPD Foundation ) will see your question and have an answer. I am wondering if this is the same as lung denervation? If so, then it is still in trials, I think. But I may be wrong, and Dr. Mannino will have the correct answer.

Author: Jazzybean
0 Votes
1 Answers
Mild emphysema. More info needed please

Hello I have joined the forum to best support my mother who has been diagnosed with emphysema this week. The only information provided was that it is “mild” but she was not offered any blood tests or to blow and test breathing strength so don’t have any …

Author: Majorca25
0 Votes
45 Answers
How did everyone quit smoking

Like Clipper, I used the Chantix program to quit. You continue smoking for a week when you first stop taking the medication, which helped me feel less "deprived." Their website also offered an online support group, which I didn't use very long as the …

0 Votes
5 Answers
Is anybody looking at NAD+ (nicotinamide adenine dinucleotide) or NR (nicotinamide riboside)

I have seen this study, and other articles reporting on this study. This does look promising, but more research is surely needed. Wondering why this isn't happening? This is an easy, supplement to get - not some expensive pharmaceutical needing a …

Author: Richard DJ
0 Votes
5 Answers
Looking for some guidance/advice

ello, I am a 35 yo male who has been active his whole life with sports and working out. I was “diagnosed” with exercise induced asthma due to coughing excessively running in cold, dry environments. Other than that, no noticed issues. I have grown up …

Author: MattR
0 Votes
3 Answers
Mom got diagnosed with emphysema on CT. A few questions.

Hello everyone, I am new to this place here but I have already read a lot. my mom had a CT scan done and they found moderate emphysemous changes. she does not have symptoms and has FEV of 93%. The doctor said her lung function is very good for her age …

Author: RinchenBo1
0 Votes
1 Answers
Can someone please break this down in English for me please lol.

Result Note: Met ATS criteria for acceptability with expiration > 6 seconds. Volume- time graph with plateau. F-V loop with normal appearance. Mild obstruction (ratio 67%; postbronchodilator FVC 5.89 L, 114% predicted; FEV1 3.95 L, 96% predicted), no …

Author: Anthony215
0 Votes
19 Answers
Ohtuvayre from Verona Pharm

Has anyone been prescribed the new nebulized therapy that is supposed to reduce exacerbations and is steroid free, I think, Ohtuvayre from Verona pharmacy? It has had great test results but my doctors here aren’t familiar with it apparently it’s some …

Author: Sedona7
0 Votes
4 Answers
Does anyone else have problem with dry air in the winterter.

I have been going downhill with my breathing just lately. I am wondering if the dry heat in my house is affecting my lungs. I use an APAP at night it dries out my mouth and throat, so that along with the dry heat may be a problem. any thoughts. one other …

Author: Who Me ?
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0 Votes
6 Answers
Check-In: Do You Have an Action Plan?

Action plans are important tools that help you recognize early signs of flare-ups (exacerbations). These can include more coughing, wheezing, or exhaustion. If you know these signs, you can get treatment fast. This can help prevent serious health …

0 Votes
1 Answers
I am looking at using Oxy-View glass frames.

Does anyone use Oxy-View oxygen therapy glasses. If so, do you like them? Are they purchased directly from the company. Any info will be greatly appreciated. Thanks!

0 Votes
14 Answers
COPD: Does anyone use a fan to help them breathe?

I have had COPD since 2006. It has progressed to end stage. Long ago I found that by using a floor fan in my bedroom, and other places, it helps me get my breath. I do not know why this is true, but it is. I wanted to see if anyone else has found this.. …

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0 Votes
7 Answers
cannot Get dressed without completely exhausting myself. The hardest part is putting on my socks. I

cannot Get dressed without completely exhausting myself. The hardest part is putting on my socks. I become breathless and have to go into a recovery mode. Takes about 90 seconds to get under control. That’s only a little thing. I’m unable to rake leaves, …

Author: DowntownJB
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0 Votes
2 Answers
Dr. Mannino Question Please - Hyperbaric Chamber for Wound Care with COPD?

I have two wounds on my lower leg which are not healing well and have been going to a wound care doctor. She is considering sending me to a hyperbaric chamber for treatment, but is concerned about whether it would be safe due to my COPD. I would like …

0 Votes
6 Answers
May change Inhalers

Hi GAnne - Dr. Mannino has given you good advice concerning if it's working not to change your medication. But, if you need to, due to the cost, then I wanted to remind you that Trelegy contains 3 medications, whereas Symbicort only contains 2, …

Author: GAnne
0 Votes
3 Answers
Prednisone

I have been reading that taking Prednisone long term can cause cancer. I have been on it for 6 years. My doctor never told me this. Have you heard of this? Worrie

Author: PamK
0 Votes
8 Answers
Soreness and extreme tenderness in chest muscles

I have extreme soreness and pain in my chest muscles for sometime now, and it hurts even with light pressure. During episodes of chest tightness and pressure, I experience sharp and throbbing pain that extends to my neck and mid-back. Is this normal?

Author: Jasnee
0 Votes
4 Answers
O2 delivery

This is not done routinely. I have only heard of that being done in research settings Last year we studied non prescription "noncentrators" that may not deliver the amount of oxygen they say. https://www.healio.com/news/pulmonology/20230425/n... You …

Author: lazy t
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0 Votes
3 Answers
Raising oxygen levels

My roommate has had COPD for The last 5 years. He has been on level 8 on his machine. His levels run 93 to 96. Today is levels went up to 98/99 when sitting and would drop to 80 to 83 when he would stand up or take a couple steps. Pulmonologist said to …

Author: Teri234
0 Votes
6 Answers
Tightness in my throat

Hi everyone and merry Christmas I’m getting worried that my emphysema has got much worse I have a lung capacity of 27% and recently I have had tightness in my throat and allot more breathless than my normal I had the doctor out he thought my throat …

Author: Shazam
0 Votes
15 Answers
When is a chest infection an exacerbation ???

Thanks all… I’ve made an appointment with the paramedic at my GP surgery for 6:00 this evening… From talking to the secretary, ‘rescue packs’ now have to be prescribed, probably due to a perceived over use by patients… So I’ll just have to wait and see… …

Author: 1fatfanny
0 Votes
10 Answers
Chest pain when I breathe or cough

Hope you guys are doing good!! I had a cold few days ago which ultimately lead to a minor flare up. I feel a weird discomfort in my chest and it hurts when I breathe or cough or even laugh. I have been taking my inhaler but still a slight pain is there. …

Author: Jasnee
0 Votes
4 Answers
Advocating Cobb county Ga. Medical outdoor burn ban

Hi David - First, I'm very sorry about your loss. Thank you for trying to make Cobb County, GA totally smoke-free. Our daughter and grandchildren live there. I don't have a lot of suggestions, but have you contacted the local Health Department? I live …

Author: dwbirk45
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0 Votes
4 Answers
Second concentrator

Medicare will generally only pay for 1. With a doctors prescription you can purchase a second one

Author: Evie
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.