Caring for the Caregiver: More Resources for Your Friends and Loved Ones

Posted on June 17, 2024   |   

This post was authored by Kristen Szymonik, BS, RRT, AE-C


When you think of a caregiver, who do you picture? Are you thinking about a person pushing someone in a wheelchair or taking care of a person in a bed at home? While these pictures may pop into our minds when we think about caregiving, they are actually missing some folks! A caregiver can be anyone: a son or daughter, husband or wife, mother or father, friend, relative, neighbor, or partner. A caregiver is anyone who loves and cares about you.

Health care teams tend to focus on the person who is living with COPD and often forget about the caregivers in that person's life. Caregivers have one of the hardest and most important jobs—supporting people with chronic health conditions. So why are their needs so often overlooked? The COPD Foundation offers resources just for the caregivers in your life. These are the people who care deeply about your health and well-being, and they should be supported and celebrated!

There are many helpful resources available for caregivers. Village Medical and the COPD Foundation recently collaborated to produce a new COPD Caregiver Packet, which features tips for you and your caregivers. Another helpful resource is the COPD Caregivers Toolkit, created by Respiratory Health Association, that offers important information on how caregivers can care for both themselves and someone with COPD.

The COPD Foundation is committed to offering more resources for caregivers in the future. Keep watching our social media and Downloads Library for more resources as they become available.

Think about the people who care about you. What is their role in your journey with COPD? How do they support you? Maybe you have a friend who sits with you and listens to you talk about your experiences. Maybe you have a family member or friend who drives you to medical appointments or shopping trips. Maybe you have a neighbor who stops by to ask how you're feeling today. All of these people are caregivers. They need care, too. And they are all important!

Are you a caregiver for someone with COPD or other chronic health conditions? What tips can you share with our community?

3 Comments



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  • Yes, I am a semi retired Health Educator/Caregiver. I always think of Caregivers with respect and pride for all that many of them offer professionally or privately, paid or unpaid for their services. Some caregivers provide many hours of unpaid support/services to family members and others including strangers at times. A caregiver in many instances derive the joy of being present and able to provide support/services to the recipient(s) at times just for listening and assuring them that they're not alone, including some as mentioned in the article.
    In the process, I agree with Kristen that Caregivers often neglect or overlook their own needs in many instances and it is unintentionally too. I was the lead Caregiver for both of my parents in my family and their providers. Both of my parents had multiple chronic conditions (comorbidities), my father had COPD which was only diagnosed later. After his diagnosis, I also learnt about COPDF and it became one of my primary resources until now. In some instances, Caregivers need(s) are an unintentional neglect deserving our support and the available resources highlighted in the article.
    Reply
  • I'm a 63 yr old single veteran with advanced lung disease. Not sure if this comment is relevant to this blog but I've been worked up and assessed for a double lung transplant and turned down by one facility for having no primary support person. I'm being assessed at a second facility and I'm hearing the same thing about how not having a primary support person is a deal breaker for getting on a donor list. My Veterans administration primary and pulmonary care teams have told me that it might be possible that they could provide a nursing facility to serve as my support team in the event I have no primary person. Also, are there transplant facilities outside the US who would consider me if the VA provides a support system for recovery?
    Reply
    • Welcome Gary......I hope the VA can help with everything you need. I don't know the ins and outs of getting a lung transplant. Other countries do perform transplants. Other folks with more knowledge of transplants will see your post and hopefully have some answers for you. I just wanted to welcome you and let you know you'll get lots of support here. Click on the tabs at the top of the page--helpful info there.
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