COPD360social welcomes new member NPRVAClinic1 who joins 61,012 current members of our community. Weโ€™re glad you're here!

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Hello and good afternoon. Had to call my immunologist. Mucinex was helping me, but this weather has made things worse. Started feeling like I was only taking half-breaths again when inhaling. So- doing a small Prednisone burst, starting with 20 mg per day, for three days, tapering by 5 mg every three days, until I am down to my daily low dose of 5 mg. Staying on the low dose until I see him on my birthday...27th. 

5 years ago

Jimmy S. California State Captain

Jimmy S. California State Captain Good Morning Everyone.. I hope and pray your having a good day. Hope is such a powerful word with a lot of meaning. Hope never abandons you, you abandon it. Hope is a good thing, maybe even the best of things, and good things never die. Hope means hoping when things are hopeless, or it is no virtue at allโ€ฆ
As long as matters are really hopeful, hope is mere flattery or
platitude; it is only when everything is hopeless that hope begins to be
a strength.๐Ÿ˜Ž  Have a nice day all and remember to stop and smell the roses today.

5 years ago

MissyH

MissyH

Are the scented wax melts off limits for people with COPD? I am wondering if there is anything at all scented that is safe to use. I do miss nice scents like orangenin the house, but not at the expense of health, of course.
My doctor did say no essential oils. I am guessing the wax melts would also be bad?


5 years ago

Margorita

Margoritacommented onQuestions about Portable Oxygen Concentrators

 I am a "newbie" here, and now seems a good time to introduce myself.Reading the questions and comments on this topic of POCs has been helpful, interesting and informative. I just wish to say thank you. I am grateful I found this group. ...

5 years ago

Mrs, Terry

Mrs, TerryGood day to all...   Waking up to another hot sunny one, but not nearly as bad as other areas.. It surely makes for cabin fever for many of us. I sometimes have problems with going in and out (shopping, etc.) of ac to heat. and wind up feeling the old elephant start sitting on my chest.  I should`nt be complaining because winter will be here before we know it.

5 years ago

Lorrie State Captain of South Mississippi

Lorrie State Captain of South Mississippi Wanted to share our project with my friends.  My idea was to take a once upholster ottoman that had been abused by kids and food and drinks over the years and turn it into a beautiful work of art . Made from old fence boards and a couple of peices of live edge pine boards and make this One of a kind peice  of furniture and this is what I came up with and my hubby and I built it .

5 years ago

Stephanie Williams, RRT (COPDF VP of Education and Engagement)

Stephanie Williams, RRT (COPDF VP of Education and Engagement)

Good morning!
What good apps do you all use to track air quality/pollution on your phones or tablets?  I am comparing a few and am looking for your feedback.  What information do you find to be helpful to you?

5 years ago

Lorrie State Captain of South Mississippi

Lorrie State Captain of South Mississippi

Mornin y'all 
It's going to be a Hot one here today 
heat indexes from 108 to 115 . Had to cancel my Pulmonologist appointment for today , can't make the car ride without Air Conditioning. Just have to reschedule.  Was going in about my sinuses and I'm sure my Breathing is labored from the Heat and Humidity being so high. Everyone ive talked to is having Sinuse problems,  and for this time of year it's unusual here .Really starting to feel like it's got something to do with the Blue Green Algae that has been a problem this year.  Or the winds have been blowing in from the Gulf could it be the Chemical Corexit they used on the Oil Spill with the heat it has vaporized and is entering the air ? Things that make you go Hum.

5 years ago

Tracey E

Tracey E

I recently got a Trilogy machine.Was wondering if anyone else has one..what you think? Is it helping you? I have noticed no difference. Thanks

5 years ago

Community Announcements

Community Announcements

We have recently noticed that some members are posting their email address on the activity feed and asking others to contact them only through their Email. They might say that they want to discuss COPD or some other topic. This is a dangerous practice in that the person posting their email address could well be a spammer or have bad intentions. Please only communicate with other members through private messaging on the site and NOT by email unless you personally know the person outside COPD360social. Do NOT  for any reason ever post your Email, address or phone number. Do NOT extend that information in any form to other members unless you know the person extremely well. 

5 years ago

heidiweber

heidiweberasked the question: I am a victim... I am hunted in fraud.

I had bought my COPD treatment medication from an online pharmacy i.e 24*7pharmacy. But this online pharmacy is rogue and doing fraud with customers. this pharmacy is not shipping my product. Anyone suggest me? how to find a safe online pharmacy.

5 years ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Anyone Having Problems Getting or Keeping Liquid (or other) Oxygen System?

Well, the oxygen was delivered todayโ€”no idea whether it will be delivered again in another 4 weeks as scheduled.
Kandy State Captain of South Dakota also answered the question Kandy State Captain of South Dakota also answered the question

5 years ago

Ffm

Ffmasked the question: Best Pulmonologist in My Area?

My 87 year old dad (who has advanced COPD/emphysema) needs new doctors because they both just retired (pulmonologist and internist - or maybe a combo). He lives in zip code 10707 (Westchester County, New York) -- can anyone recommend very good, smart, …

5 years ago

Anonymous

Anonymous

In my notifications, is there a way for me to unsubscribe all in a single step. I unknowingly am subscribed to over 2,000 comments. I can't imagine unsubscribing from each one of them individually. I could just leave them but I am assuming its chewing some amount of disc space. 

5 years ago

Lorrie State Captain of South Mississippi

Lorrie State Captain of South Mississippi

DebbieB I hope you're feeling better today.  Haven't heard anything this morning from ya.๐Ÿ™

5 years ago

Lorrie State Captain of South Mississippi

Lorrie State Captain of South Mississippi

Oh my Heat indexes today in Mississippi 105 to 108 and its been raining. It feels like a Sauna out here.  COPD and Saunas and me not getting along.  Stay cool everyone ๐Ÿ˜ฅ๐Ÿ’ฉโœŠ๐Ÿ™

5 years ago

nana1975

nana1975

I have a weird or dumb question, what does it mean when your throat feels like it's dry and sticking, also feels like sand in throat?

5 years ago

Bill Clark - Community Manager

Bill Clark - Community ManagerWe need your help to answer a few VERY short questions. Our Community on COPD360Social has for a long time been expressing their concerns about the side effects of the various drugs they are prescribed by their doctors. Because a person with COPD often has a treatment team of two or more doctors, there is also a concern in the community as to how any new drugs will interact with drugs that are already
being taken.

The COPD Foundation along with
some of our partners are trying to understand how patients obtain information on the drugs they are prescribed and the effect they will have on their COPD treatment. We need your help to answer a few VERY short questions. It will just take a few minutes and your response will be valuable in helping us gain insight into a very real problem.

Please click on the link below to answer the very brief survey; and as always thanks for helping to make a difference!

https://www.surveymonkey.com/r/L8PZQ9B

Deciding between treatment options: what's your process?

Web survey powered by SurveyMonkey.com. Create your own online survey now with SurveyMonkey's expert certified FREE templates.

5 years ago

Lorrie State Captain of South Mississippi

Lorrie State Captain of South Mississippi

Good morn y'all hope everyone is having a great start to their day. Seems like just about every person I talk to is having major problems with their sinuses around here, as well as myself one word of advice be very careful taking Sudafed it dried my Lungs out causing me to feel like I couldn't breath, the mucus that many of us have with COPD would not come up. Till the Sudafed wore off . So be very leery of this medicine if it is in the Prescription form . Make me feel like I was having a Flare up. Going to Pulmonologist for follow up in the morning. Have a Great day my friends.

5 years ago

Chris K - COPDF

Chris K - COPDF

Whatever happened to Veteran? Are you still out there?

5 years ago

Caroline West Virginia State Captain

Caroline West Virginia State CaptainI decided to take the lake trail again today.  Sorry my bit of serenity is late, but I go involved with a very delightful lady from the doctor's office and then had to make up the work that I missed.  My pulmonologist was pleased with my progress when I saw him today.

5 years ago

edpe77

edpe77

I just watched Woodstock on American Experience - PBS. While I never had ambition of going, I also didn't understand the significance of it. Essentially nearly 1/2 million kids enjoyed 3 days of peace and music...and each other. Surprisingly, the community pitched in to help feed them when food ran out, All in all a very peaceful concert during some very trying times, just a couple years before the Vietnam war ended. Good watch if you get a chance to catch it.
ed

5 years ago

Katherine58

Katherine58asked the question: Dizzy after smoking a cigarette

does anyone still smoke cigarettes and do you feel dizzy after - I seem to be dizzy after smoking a cigarette then it goes away - is it my anxiety or what Yet when I take my oxygen levels they are between 95-99 I have been diagnosed with copd and …

5 years ago

Kristen Willard

Kristen WillardCaught this article today and found this fascinating. I had seen research before relating processed meats to an increase in risk for chronic disease, but never COPD specifically. 

https://www.mdmag.com/medical-news/processed-meat-greater-copd-risk

Processed Meat Associated with Greater COPD Risk

A new study found significantly greater COPD development risk among middle-aged women who eat processed meatโ€”and doubly worse risk for those who also smoke and have unhealthy diets.

5 years ago

Mrs, Terry

Mrs, Terry

I new I should have put my glasses on !!!!!!! It`s Tuesday and though it`s a good day I have brain and eye fog!!!

5 years ago

Mrs, Terry

Mrs, TerryI am doing so much better getting exercise and tuning in to see what`s up here. Hopes and prayers that everyone is having a good Tuesday.

5 years ago

Lorrie State Captain of South Mississippi

Lorrie State Captain of South Mississippi

Good Mornin This weather and COPD does not mix Mornin Storms have been going on since Friday. It makes for Muggy, steamy, hot days, and evenings. Im so bored. Staying inside is driving me CRAZY . With that being said, My smoking has been A whole lot less. Thats a Great thing. Have a Wonderful day Y'all

5 years ago

Glenn T. Alexander

Glenn T. Alexander

A NEW PHONE IS FINALLY BEING DELIVERED TODAY; BUT they need a signature. i will just have to wait to call the ambulance. Montelukast and inhaler might barely get me through another day again, i hope. The ambulance drivers know i feel breathe better when they check me out and see my vitals and bp, oxygen is ok, and let me go. Why is that and how much of this is panic? My chest congestion needs to be broken up and feels cold and dry. I breathe better when tha cough is productive. I really have cut down on my smoking because I can't breathe whenever I smoke. IT IS NOW DO OR DIE>AND I AM ACTUALLY DOING IT!

5 years ago

Jimmy S. California State Captain

Jimmy S. California State Captain Every once in a while, when I need little reminder of what Iโ€™m capable of achieving, I like to find a good quote to bring my spirits up.
SO HERE IS MY QUOTE OF THE DAY!
It doesnโ€™t matter how long youโ€™ve waited, thereโ€™s always time to make a change and strive for more.

5 years ago

K STEELE

K STEELE

๐Ÿ˜ณ Hi Kandy! My activity feed has been taken over by your messages. 
I don't understand a lot because I'm
Not on oxygen. Will start PT Thurs for legs & shoulders so should be more active soon. Not RT but will help get me moving. Thanks for being my friend!  Kaya  โ˜บ

5 years ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.