Meet Your COPD Foundation Captains!

Dayton, OH

Demi Montgomery is a speaker for systemic sclerosis and the rare disease community. Creator of BIPOC programs, For Love of Children Board Member as well as the driving force behind State Bill 133. Demi resides in Dayton, Ohio where she is a wife, mother and community volunteer. Demi is also the creator of Jacob’s Hugs Registry and The Waiting Room Entertainment. She is a speaker/collaborator/moderator for Patients Rising, Brain Injury Network and the National Organization for Rare Disorders with a feature film on the Disorder Channel “Amy & Demi’s Scleroderma Journey''. Her responsibilities are to increase scleroderma awareness within her community and surrounding areas; by obtaining proclamations annually, program writing and volunteering for fundraising events. She attends capitol hill days and meets with public officials regularly to advocate for research funding. She also creates interactive content for the disabled community at large. She is an alumnus of University of Phoenix with an AA in Human Service Management and trained in Mental Health First Aid. She is also the recipient of the National Scleroderma Foundation 2020 Advocate of the Year Award and 2022 Program of the Year award for BIPOC (Black, Indigenous, People of Color)